PULMONARY HYPERTENSION ASSOCIATION NEWS

Michigan Family Shares Daughter’s PH Journey

Cheryl Wegener felt grateful when her daughter’s former classmates chose PHA as a recipient of their senior class fundraiser. She thought the donation was a fitting tribute to Madison, who died during her freshman year of high school. Cheryl shares Madison’s story for PHA's spring fundraising campaign. She and her husband will present the check from the fundraiser at PHA 2022 International PH Conference and Scientific Sessions, Aug. 15-18 in Indianapolis.

Oxygen Access Bill Introduced in Senate

Thanks to PHA and other patient organizations, a bill to improve oxygen access has been introduced in Congress. The legislation would remove supplemental oxygen from Medicare’s competitive bidding process, among other reforms. The bill’s introduction in the Senate is just the first step,” says Katie Kroner, the Pulmonary Hypertension Association’s vice president of advocacy and patient engagement. “Advocate voices are essential to drive the new bill through the legislative process.”

2 Papers That Show How PHA Supports PH Research

New research papers that increase understanding of pulmonary hypertension are linked to PHA research initiatives. One paper was authored by Catherine Simpson of Johns Hopkins University, the recipient of a Pulmonary Hypertension Association research grant. The other, by Jacqueline DesJardin of University of California-San Francisco and colleagues, was based on data from the PHA Registry.

Start a PHA Support Group

Leading a support has more benefits than you might expect. “I wanted to help bring hope to PH patients, but what I learned is that they actually have given me hope,” says Monica Penaranda, leader of PHA’s Greater Los Angeles Support Group. “It’s a beautiful thing.” Learn how to start a PHA support group in your area.

Tampa Walk Raises $20K

The sixth annual Tampa O2breathe 5K and Walk was raised more than $20,000 for the Pulmonary Hypertension Association. The Feb. 18 event at Al Lopez Park in Tampa, Florida, memorialized Missy Stok Rizzo.

Oxygen access bill introduced in senate

Thanks to PHA and other patient organizations, a bill to improve oxygen access has been introduced in Congress. The legislation would remove supplemental oxygen from Medicare’s competitive bidding process, among other reforms. Learn more.

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PHA News, a publication of the Pulmonary Hypertension Association (PHA), is the trusted source of up-to-date news, community events listings and lifesaving information about pulmonary hypertension for patients, families and caregivers, healthcare professionals and supporters.

PA - U of Penn (Virtual)
Tuesday, March 19, 11:00 AM - 12:15 PM EDT
OH - Southwest General (In Person)
Tuesday, March 19, 5:00 PM - 6:00 PM EDT
IN - Indianapolis (Hybrid)
Tuesday, March 19, 6:00 PM - 7:30 PM EDT
CTEPH Support Group
Tuesday, March 19, 8:00 PM - 9:00 PM EDT
CT - University of Connecticut (In Person)
Wednesday, March 20, 5:30 PM - 7:00 PM EDT
Caregiver Support Group
Wednesday, March 20, 7:00 PM - 8:00 PM EDT
UT - lntermountain Medical Center
Thursday, March 21, 4:00 PM - 6:00 PM MDT
AZ - Arizona Pulmonary Specialists (Hybrid)
Saturday, March 23, 9:00 AM - 11:00 AM MDT

Open the full calendar

Patient-to-Patient Support Line: 1-800-748-7274

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