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Advocate

Each year, the United States Congress decides how much money to spend on federal programs and government agencies that have a powerful effect on pulmonary hypertension (PH) diagnosis, patients' access to treatments and research toward a cure. The Pulmonary Hypertension Association (PHA) makes it easy for you to learn about legislation affecting the PH community and to make a difference as a PH advocate.

Take Action

pencil iconSign the PH Bill Petition

Fight for more research, better treatments and public awareness for the PH community! Sign PHA's petition urging members of the U.S. Congress to co-sponsor the Pulmonary Hypertension Research and Diagnosis Act, H.R. 3520. We'll share this letter, including your typed name and address, with your Members of Congress to let them know that fighting PH matters to their constituents.


Telephone iconMake a Phone Call

Advocate for the Pulmonary Hypertension Research and Diagnosis Act (H.R. 3520) through a scheduled phone call with legislative staff. Get all the impact of a legislative visit without leaving home. PHA can schedule the call and provide all the information and materials you need. Email us to get started!


Corporate iconSchedule an In-Person Visit

Your elected officials work for you. Meeting with them to share your story is an effective way to gain their support of legislation affecting PH patients. There are several ways to meet with your Members of Congress, including visiting their local office, attending a town hall or inviting your senator or representative to your support group meeting.

PHA can set up an in-person meeting for you and provide all the information and materials you need. Email us to get started! Or, to set up a visit yourself, start with our search tool to find contact information for your Members of Congress.


Email iconSend an Email

We are so close to making PH history! Help us advance the Pulmonary Hypertension Research and Diagnosis Act (H.R. 3520) by inviting your Member of Congress to PHA’s Legislative Briefing on May 5, World PH Day. PHA makes it easy to send a pre-written email to your Member of Congress.


Hundreds of PH patients across the country are having trouble affording their life-saving medication. The Patients' Access to Treatments Act will lower the cost of PH and other specialty-tier medication. Email your Members of Congress about the need for better access to treatment and urge them to co-sponsor this bill.


435 Campaign logoJoin the 435 Campaign

PHA's 435 Campaign aims to have at least one PH advocate in every Congressional district. As a 435 Campaign member, you commit to build a relationship with your Members of Congress and PHA will keep you updated on all advocacy efforts so you can stay involved.


Learn More

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.