Caregivers

Joe Haan and Family Joe Haan, Outstanding Caregiver 2008, with his loving family

If someone you care about has been diagnosed with pulmonary hypertension, you may find yourself taking on unfamiliar responsibilities. Whether you’re a close family member or a friend, neighbor or teacher, you have the opportunity to provide much needed friendship and support. Chances are you have questions about PH and what you can do to help your loved one live a happy and full life.

Here you’ll find information and resources to help you care for your loved one without neglecting your own needs.

  • Envelope of Hope
    Order this free information packet to learn about services to help you plan your next steps and to find important resources for yourself and your loved one.
     
  • FAQs for Family and Friends
    What you need to know if your loved one's been diagnosed with PH.
  • Coping as a Caregiver
    The most effective and supportive caregivers are those who pay attention to their own needs to prevent caregiver burnout. Find ways to tend to your emotional health and family relationships. 
  • Caregiver Webinars
    Visit the PHA Classroom to watch videos about PH, treatments and coping as a caregiver.

Looking for someone to talk to?

Know that for every PH patient, there’s a PH caregiver who understands what you’re going through. PHA hosts virtual and local support groups where family and friends of PH patients share stories, advice and hope. Find support

Are you the parent of a child with PH?

Learn more about pediatric PH, connect with other families and become an informed advocate for your child. Visit PH Parents

 

Support is an email away

Our team of mentors is standing by for caregivers and parents looking for one-on-one, email-based support.

Email a PH Email Mentor

Patient's Survival Guide: chapter for caregivers!

Patients Survival Guide Cover

Pulmonary Hypertension: A Patient's Survival Guide is the most comprehensive caregiver and patient resource on pulmonary hypertension.

Learn more & order your guide today!

Email Updates

Stay informed about current research, events, and more.

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.