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Fighting for the Cause Online 2.0

July 13, 2011

Are you on Facebook? If so, this is the webinar for you! PHA’s Grassroots Campaigns Associate Elisabeth Williams and PHA community member Colleen Brunetti talk about how to use social networking sites to take action in support of pulmonary hypertension research and education. PHA’s Development Manager Jennifer Kaminski and PHA community member Lucia Martuccio discuss how you can go beyond Facebook to make a bigger impact and raise more funds using PHA’s easy online tools.

This webinar goes beyond our earlier webinar, “Using the Web to Fight Against PH”, which you can find in our Fight for the Cause Online section, along with other great resources.

Additional Resources:

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Presenter Information

Elisabeth Williams, PHA's Grassroots Campaigns Associate

Elisabeth Williams
PHA's Grassroots Campaigns Associate

As PHA's Grassroots Campaigns Associate, Elisabeth works to build volunteer membership in the 435 Campaign (legislative advocacy) PHAware Campaign (media outreach) and support current Campaign members in their communications with their Members of Congress and the media.

 

Colleen Brunetti

Collen Brunetti
Generation Hope Young Adult Advisory Board
PHA's Board of Trustees

Colleen was diagnosed with pulmonary hypertension about three and a half year ago. She actively raises PH awareness online by posting articles about breaking scientific research and current PH related news on Facebook and she maintains a blog at www.phandthenewnormal.blogspot.com. She also is on the patient advisory board and collaborates on moderating the PHA email group Generation Hope.

Jennifer Kaminski, PHA's Development Manager

Jennifer Kaminski
PHA's Development Manager

As PHA's Development Manager, Jennifer works to implement development programs that foster support for PHA. Programs include general membership, foundation grant-seeking, monthly giving (PHA's Sustainers Circle), and grassroots fundraising opportunities online (Web of Friends), at work (Our Workplace Has a Heart), and at celebrations (In Honor of Our Lives).

Lucia Martuccio

Lucia Martuccio
Web of Friends online fundraiser

Lucia Martuccio has been a pulmonary hypertension advocate since her sister, Maria, was diagnosed with Idiopathic Pulmonary Hypertension in July 2004. Lucia first started fundraising with Maria in 2008 through a personal fundraising page and has raised a total of $9,848 in three years. Lucia has also helped to fundraise for PHA by participating in the Cleveland Area Pulmonary Hypertension Support Group (CAPHS) Annual Walk & Roll for a Cure.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.