OUR JOURNEYS

Patient story

Marilyn Clements

November 18, 2008

Today is PH Blog Day so here I go. I was diagnosed in 1997 with Pulmonary Hypertension, a rare, incurable disease that causes high blood pressure in the pulmonary artery between the heart and lungs and can lead to heart failure. I've been on several therapies including IV infusion 24/7 for six years; now I am on an experimental drug, some pills that I take twice a day. I have come a long way and I feel better now than before I got sick. Twenty years ago, the only treatment was a heart-lung transplant. Thank God for modern medicine and possibly a cure in the future using stem cells from the patients own bone marrow. Everybody enjoy the holidays. Peace Out.

Your Phriend,

Marilyn Clements, Woodland, California

 

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.