Patient story

Pam Bagwell

My name is Pam Bagwell. I was diagnosed in 2001 with primary pulmonary hypertension, which is low blood pressures in the lungs, not high. I have to take Ventavis. Before that I was on Remodulin SubQ and I am still on Tracleer. I see the lung doctor about every month to three months. My heart doctor, unless I have problems, I see him every six months. My heart number is 90 and I went from 140 in my pulmonary waves to the 70 or 100. So the prayers and medicines I take ahve helped me tremendously.

There is hope for all who have disease, especially lung disease like ours. I go to the PAH meeting at Lexington Hospital in West Columbia when they have them. I am trying to plan to go to Sparantburg. I wear oxygen at night because my oxygen levels get down to 75 and that makes the heart pump even harder not getting the oxygen.

I want to write my Congressmen and other representatives but I just don't know what to say. How to shorten the disease I have with all the test and medicine and doctors I have seen over the years.

Now found out I have Fibromyalfia. When I was on Remodulin it caused Rhumethyroid arthiritis then I got off of the Remodulin and now I have Fibro. I don't understand what is going on with my body. I ahve CHF from the PPH, which means the right side of my heart is swollen and I get fluid built up so on medicine for that two different fluid pills.

Well, that's all I feel up to writing.

Pam Bagwell


FacebookTwitterInstagram iconLinkedInYouTube

For optimal viewing of, please use a standards-compliant browser such as Google Chrome or Firefox.

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
    Privacy Policy    Provide Feedback & Report Bugs

Designed by Matrix Group International, Inc.® | © 2016 Pulmonary Hypertension Association. All Rights Reserved.


The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.