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PHA's 8th International PH Conference & Scientific Sessions
June 20-22, 2008
Houston, Texas |
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| Upcoming Events |
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Baltimore Funwalk for a Cure
May 3, 2008
Baltimore, Md.
Fun Walk for a Cure May 3, 2008 Brentwood, Tenn.
Minnesota Pulmonary Hypertension Education Day
May 3, 2008
University of Minnesota
Belk's Charity Days
May 3, 2008
Southeast U.S.A
5th Annual North Texas PH Support Group Picnic
May 10, 2008 Grapevine, Texas
Pulmonary Hypertension Associated with Left Heart Disease
May 10, 2008
Twinsburgh, Ohio
San Francisco Bay Area PH Golf Tournament
May 13, 2008 San Francisco, Calif.
Flying for a CURE Kite Festival 2008
May 17, 2008
Edmond, Okla.
Bocce for Better Breathing
May 17, 2008
Medford, Mass.
The East Cobb Concert for a Cure May 31, 2008 Marietta, Ga.
Yale University's 2nd Annual PH Symposium
June 6, 2008
Westport, Conn. | |
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| Vol 9/Number 9 |
April 28, 2008 |
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Recognize the people in your lives
with a Conference Program Tribute
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NEW WAYS TO SHARE YOUR STORIES |
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New! Share Your Stories at Journeys Café and through Video Journeys at Conference
June 20-22 in Houston, Texas
 This year at Conference, coincidentally themed "A Journey of Hope and Discovery," PHA is making the Journeys program bigger, better and interactive! At our Journeys Café you can write your daily Conference Journey or story about living with PH, which we will post online. And, as part of a brand new era of Journeys, PHA will launch Video Journeys so you can star in your own story as well. Currently, we are recruiting people to: Visit the Conference Journeys page to learn more and sign up! |
| CONGRESS PASSES GENETIC INFORMATION NON-DISCRIMINATION ACT! |
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For 13 years, organizations such as the Genetic Alliance, to which PHA belongs, have worked in coalition to pass the Genetic Information Non-Discrimination Act (GINA). On April 24, the Senate passed GINA 95-0, leaving only the President's expected signature. The bill passed the House in April 2007.
Special thanks to the more than 100 PH advocates who contacted their senators and representatives about the importance of genetic non-discrimination protection for the PH community!
Read more about GINA and its provisions
Take action on other PH legislative issues or join the 435 Campaign |
| SOUTHWEST VIRGINIA SUPPORT GROUP'S ADVOCACY EFFORTS PAY OFF |
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Recently, PHANews reported on the Southwest Virginia Support Group's advocacy-focused meeting. Group co-leaders Jonette Robinson and Susan Temple, as well as members Elaine Moore and others, invited their U.S. representatives to attend their support group and learn about the PH Research and Education Act. As a result of their efforts, a staff member from Rep. Virgil Goode's office participated in the group's last meeting.
We are thrilled to report that on April 16, 2008, Rep. Virgil Goode became the most recent co-sponsor of the PH Research and Education Act. Congratulations Southwest Virginia Support Group!
To learn more about hosting a legislative themed support group meeting or other advocacy activity, contact Katie at 301-565-3004 x749 or advocacy@PHAssociation.org. |
| RECOGNIZE THE PEOPLE IN YOUR LIVES |
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Conference Program Tributes -- due May 1
Would you like to recognize someone special to you in the PH community? A caring nurse, a compassionate friend, or a loved one? Tributes -- in honor of, in memory of, or in appreciation of -- will be featured in our 8th International Conference program book. The cost is just $25 per tribute. Please contact Jillian Timm at Jillian@PHAssociation.org or 301-565-3004 x767 for more information or to purchase a tribute.
 An example from the 2006 Conference Program Book:
In honor of Cythnia "Alex" Flipse for being a wonderful sister and mother and for her courage, hope and joyful spirit in the face of PH. - Debbie Castro
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 PH IN THE NEWS |
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Cynthia Fink, Critical Care Nurse, Honored by Cambridge Who's Who for Outstanding Contributions to Pulmonary Vascular Care and Pulmonary Hypertension
(Cambridge Who's Who) Nashville, Tenn. -- Cynthia A. Fink, Pulmonary Vascular Program Coordinator at Vanderbilt University Medical Center (VUMC), has been recognized by Cambridge Who's Who for showing dedication, leadership and excellence in all aspects of nursing and healthcare program management. Cindy is a member of PHA's PH Resource Network. Read article
Terminal Illness Can't Dim Her Optimism(Whittier Daily News) Whittier, Calif. -- To look at her and listen to her, Monica Marie Sanchez, 28, has knockout good-looks and a smart, energetic persona to boot. So, you wouldn't guess that she is classified as terminally ill and has been on a waiting list for a double lung transplant for seven years. Read article Breakthrough Large Scale Transfection Technology Accelerates Cell Based Assay Development
(Medical News Today) -- MaxCyte announces the introduction of its ITF Inline Transfection System, a validated platform for preparative transfection, based on unique flow electroporation technology. This system enables rapid and efficient transfection of any kind of cell or cell line with any molecule (plasmids, proteins, protein complexes, drugs, mRNA, siRNA), at scales ranging from micro-liters to liter volumes. Current clinical programs with MaxCyte-engineered cells include: a Phase IIa clinical study for treatment of chronic lymphocytic leukemia (CLL) and a Phase IIa study using engineered progenitor cells for the treatment of primary Pulmonary Arterial Hypertension (PAH). Read article
Addition of 3D Echocardiography to 2D Studies Impacts on Decision-Making, Researchers Say
(Medicexchange) -- Three-dimensional echocardiography (3DE) should be routinely performed alongside clinically indicated 2D echocardiography (2DE), a study suggests. Earlier studies have shown that 3DE allows more accurate assessment of left ventricular volumes and ejection fraction. Read article |
 BUILDING MEDICAL EDUCATION IN PH EVENT JUNE 6 |
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Building Medical Education in PH is a program designed to foster partnerships between the Pulmonary Hypertension Association and PH Centers to promote continuing education in the field of Pulmonary Hypertension.
Yale University Pulmonary Hypertension Center Hosts 2nd Annual Pulmonary Hypertension Symposium
Registration is now open for the Yale CME activity, the "2nd Annual Pulmonary Hypertension Symposium," being held on June 6, 2008, at The Inn at Longshore, Westport, Conn. The proper diagnosis, classification and treatment of pulmonary arterial hypertension (PAH) and its distinction from other forms of pulmonary hypertension (PH) is a complicated and rigorous algorithm. This symposium will provide current educational information to properly diagnosis and treat pulmonary hypertension. Learn more
If you would like to partner with PHA in promoting your next CME event, please contact Jennifer Carman, Meetings Planning Associate, at 301-565-3004 x763 or meetings@PHAssociation.org. | |
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