OUR JOURNEYS

Patient Story

John

As told by his mother, Lori Welsh

My son was born 12 years ago with a diaphragmatic hernia. He survived several surgeries to repair his diaphragm, yet this left him with a very small left lung that has very little function. He has very high pressures and at age 3 was put on Viagra, tracleer and oxygen. His last heart cath revealed that his pressures weren't getting any worse, yet not any better either. His doctor is thinking about putting him on yet another drug, Tyvaso - in additon to the tracleer, revatio, digoxin and aspirin. I hate to see him struggle to breathe - I'm hopeful there will be a cure in his future.

- Lori Welsh, Mom to John, who wants to be a MLB player when he grows up! :)

 

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

For the best viewing experience of this site, it is recommended that you use Internet Explorer 8 or 9 or Firefox.

© 2014 Pulmonary Hypertension Association. All Rights Reserved.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
Webmaster@PHAssociation.org
    Privacy Policy   Virtual Tour of Website    Provide Feedback & Report Bugs

Designed by Matrix Group International, Inc.®

NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.