Patient story

Patricia Patterson

In early 2005, the first doctor who confirmed my PH gave me 8-24 months to live. When the 2006 Conference came around I was still dealing with the shock and the life changing repercussions of it all. I just wanted to be with my family. But I thought, maybe I can live until the 2008 Conference. It gave me a goal and, most importantly, I’ve learned that the PH community is my family.

If you let them, the wonderful people at PHA and other PH patients will fill your life with love, hope and joy. I am really excited to meet everyone, share journeys and gather information at the 2008 Conference. Hope to see you in Houston!


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.