April 2, 2014

 
       
PHA News, Pulmonary Hypertension Association, Empowered by hope
Blog Post from PHA's President
    Vallerie McLaughlin, MD

Leadership, Face to Face...

I had an interesting call from Sean Wyman the other day. Sean is an energetic young man who is active in our community, a patient who is currently attending medical school. As we spoke about a number of issues, we got onto the subject of PHA’s recent Board meeting. Sean found it interesting and suggested I share it with the broader community. Thanks for a good idea, Sean. » Read more

FDA Wants to Hear From You
    Meg Horne

What PH Symptoms Most Impact You?

On Tuesday, May 13, PAH patients and the parents of young patients have the chance to tell the U.S. Food and Drug Administration (FDA) what symptoms most impact them and what they would most like a PAH treatment to do. Join PHA for this once-in-a-lifetime opportunity to speak directly to FDA drug reviewers. Participate in person or via live webcast. Register with FDA | Hop on a PHA Bus from New York, Philadelphia or Maryland

Sponsor a Mile for Team PHenomenal Hope
    Race of Our Lives

Enter the Race of Our Lives UP Wristband Contest

Support Team PHenomenal Hope on their incredible journey and work toward your own personal fitness goals by entering the Race of Our Lives UP Contest. Every mile sponsored from April 5-19 earns you one entry in the raffle. The more miles you sponsor, the more chances to win! » Learn more

Webinar for Patients & Families
    PH Care Centers

The PHCC Initiative: The Next Chapter of PH Management

April 30 at 3 p.m. ET/12 p.m. PT
The Pulmonary Hypertension Care Centers (PHCC) initiative aims to establish a program for accreditation of centers with special expertise in pulmonary arterial hypertension, with the goal of improving overall quality of care and outcomes in patients with this life-threatening disease. Join us for an opportunity to ask PHCC medical leadership questions and learn more about the program. Register now | View all upcoming PHA Classroom webinars

Pediatric Research Grants in Action
    beakers

Meet the Barst Pediatric Research Fund Awardees

May 27 at 8 p.m. ET/5 p.m. PT
In 2012, PHA established the Robyn J. Barst Pediatric PH Research and Mentoring Fund in memory of Dr. Barst, a pioneer in the field of pediatric PH research and treatment. In this webinar, the 2014 grantees, Dr. Mehdi Fini and Dr. Melanie Nies, will discuss their research and the potential applications for pediatric PH treatments. » Learn more and register

PH News Headlines
 

 

 

Research & Treatment News
» Pulmonary Hypertension Therapies Could Improve, Thanks to New Yale Study

» First Guidelines for Patients with Pulmonary Hypertension in Sickle Cell Disease

» Sjögren's Syndrome Can Be Dangerous for Your Heart and Lungs

» Revatio: FDA Clarifies Warning About Pediatric Use for Pulmonary Arterial Hypertension

Updates From PHers Around the World

» PH Plus Blog: Nutrition Month

» Conference 2014 Blog: To Begin to Hope Again: Dale Rankin-Mack

» CrawPHish Festival Organizers 'Fighting Back' Against Disease

» Beamsville, Ontario, Man Waiting With Each Breath

» More News

Connect
with PHA

 

Telephone Support

Caregivers
April 16, 2014
1:30 p.m. ET/10:30 a.m. PT

Parents
April 21, 2014
8 p.m. ET/5 p.m. PT

April 21, 2014
11 p.m. ET/8 p.m. PT

Patients
April 24, 2014
8 p.m. ET/5 p.m. PT

Upcoming Events

April 9, 2014
Understanding How to Maximize Your Independence for Everyday Living
online

April 12, 2014
The PHenomenal Mile
nationwide

April 12, 2014
Walk to Cure PH - The Ellie Godina Memorial Walk
Euclid, Ohio

April 13, 2014
PHenomenal Hope 5K
Pittsburgh, Pa.

April 29, 2014
PH Treatments: What's on the Horizon
online

» Go to the Events Calendar

Video Spotlight

Conference Checkpoint Video

PHA recently visited Indianapolis in preparation for our upcoming 2014 Conference this June. Check out this video, filmed on-site, to see the Conference hotel, different locations for our Kids' Room field trip, and some of our vendors who will help make Conference an amazing experience for all! » Watch this video

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.