Patient Mentor Profile

Janet

Janet

Diagnosed in 2001

"I am a stay at home "Mimi" and mom, active in my local support group, love making earrings and watching HGTV and movies when time allows. I'm not a fan of PH, cause fans sit on the sidelines and cheer. I want to be involved in awareness and advocacy."

About Janet:

  • Born in 1962
  • Lives in North Carolina
  • Type of PH: Idiopathic (formerly known as primary)
  • Languages: English

Janet feels comfortable discussing her experiences with:

  • infused medication
  • supplementary oxygen
  • traveling with PH
  • organizing medical records
  • advocacy and awareness-raising
  • fundraising and organizing special events
  • local support groups

Contact Janet: 

Fill out my online form.
Disclaimer: PHA PHriends are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.