Patient Mentor Profile

Marcia Beverly

Marcia

Diagnosed in 2005

"I'm a retired elementary school teacher with grown children and two grandchildren. I love to read mysteries and play on the computer."

About Marcia:

  • Born in 1953
  • Lives in Texas
  • Type of PH: Idiopathic
  • Languages: English

Marcia feels comfortable discussing her experiences with:

  • oral medication
  • supplementary oxygen
  • cardiac or pulmonary rehabilitation
  • depression and mental health issues
  • traveling with PH
  • communicating with medical personnel
  • organizing medical records
  • legislative advocacy
  • media awareness
  • local support groups
  • online communities (PHA email groups, message boards, chats)

Contact Marcia:

Fill out my online form.
Disclaimer: PHA PHriends are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.