Tips for Kids, By Kids

Here are some ideas from kids who have pulmonary hypertension (PH) in their lives. If you have a tip you’d like to share with other kids who have PH in their lives, email it to Kids@PHAssociation.org and you might see it here!

PH Kid doing art at the hospitalJocelyn, age 13

How to make the hospital fun

Dread hospital visits? Here are tips from other kids:

  • Invite friends to visit you in the hospital if you’re staying overnight, or bring a friend along to hang out in the waiting room
  • Pack fun activities, like crafts or your favorite books
  • Play games while you wait

How to miss school without falling behind

Ideas from kids with PH:

  • Get an extra set of books so you don't have to carry yours to and from school. - Kathleen, age 13
  • Meet with all your teachers at the beginning of the year to explain PH. - Danielle, age 15
  • I am homeschooled now because going to school full-time was too tiring. I like being homeschooled because I can work on what I want when I want. - Kendra, age 11

Watch to hear from other kids how they
live with PH

Here are some more suggestions:

  • Have your parents put in a homework request as soon as you begin to miss school.
  • Make a schedule of when your assignments are due. Print out a calendar and mark due dates so you can easily see them and keep track, even when you're absent.
  • Get your friends to send you class notes every day.
  • Have teachers identify what tests can be made up.
  • If you feel well enough, keep up on your reading.
  • If you're not ready to take a test — because you’ve missed classes for appointments or fallen behind in your homework during illness — don't take it. Explain to your teacher that you need a few more days to prepare. Do this with respect, and always be nice. Don’t take advantage of this. Be responsible! If needed, get your parents involved or speak with your principal.

How to play sports without overdoing it

Advice from PH pediatricians

  • Talk to your doctor before starting a new sport
  • If one sport doesn’t work for you, try another!
  • Know when to call your own time-out – if you feel tired or feel symptoms coming on while playing a sport, take a break
  • Make sure you’re staying hydrated!

Advice from PH athletes

 Isaiah playing soccerIsaiah, age 8

"I think that if PH kids are able to play sports, I really believe that they should try it out. Sports are a part of every normal kid’s life and PH kids should be able to live a normal life even though they have this disease. From my experiences playing sports, just going out on the field to play makes me feel great, knowing that I have accomplished so much and that I feel just like any other kid out there with me." - Sam, age 14

  • Make sure you feel comfortable doing the sport or activity; try different activities to find ones that aren't too strenuous for you. - Camille, age 16
  • Even if it’s difficult to win, play just for the enjoyment of the game. - Danielle, age 10

How to teach your classmates about PH

Take one of our PH games to your school to help your classmates learn about PH.

play PH games

Have you done a class project teaching others about PH? Tell us about it by emailing Kids@PHAssociation.org!

Looking for more tips?

Read interviews with other kids impacted by PH to get their tips!

Meet PH kids button

Learn more:

what is ph button why do people have ph Is there a cure button

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