Patient-to-Patient Support Line Volunteer Profile

Lynn

Lynn

Diagnosed in 1983

"I am a single women, I run a support group in my area, and I love hanging out with my family and friends and taking care of my dog."

About Lynn:

  • Born in 1964
  • Lives in Connecticut
  • Type of PH: Associated with another condition
  • Associated Conditions: Congenital Heart Disease
  • Languages: English

Lynn feels comfortable discussing her experiences with:

  • inhaled medication
  • oral medication
  • supplementary oxygen
  • cardiac or pulmonary rehabilitation
  • depression and mental health issues
  • communicating with medical personnel
  • local support groups
  • online communities (PHA email groups, message boards, chats)

Contact Lynn: LynnL@PHAPHriends.org

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Disclaimer: Patient-to-Patient Support Line volunteers are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.