Careers at PHA

The Pulmonary Hypertension Association (PHA) is a dynamic, fast-growing organization serving pulmonary hypertension (PH) patients, their family members and the medical community. Pulmonary hypertension, a life-threatening illness described as high blood pressure in the lungs, affects people of all ethnic backgrounds and ages. PHA provides high level medical and patient education, raises awareness of PH in the general public and medical community, advocates for legislation, supports research, and helps patients connect with others to end their isolation.

We believe that anyone whose life has been touched by this difficult illness has the right to fight back as much as they are willing and able. We also believe that PHA has an obligation to create the environment that makes such involvement possible.


Vice President, Communications and Marketing

The Pulmonary Hypertension Association (PHA), a dynamic, highly respected organization serving pulmonary hypertension (PH) patients, their family members and the medical community, is seeking a Vice President, Communications and Marketing.

Pulmonary hypertension, a life-threatening illness described as high blood pressure in the lungs, affects people of all ethnic backgrounds and ages. Without proper diagnosis and treatment, a patient’s average lifespan is 2.8 years.

PHA provides high level medical and patient education, raises awareness of PH in the general public and medical community, advocates for legislation, supports research, and helps patients connect with others to end their isolation.

PHA is headquartered in Silver Spring, Md., with a staff of 40. In addition, the organization currently has four fund-raising field offices in major metropolitan areas whose work is supported by headquarters staff. Current staffing of the chapters is approximately 16.

The Vice President, Communications and Marketing, reports to the President and CEO.

This position requires occasional weekend and evening work, and limited domestic travel.

GENERAL POSITION SUMMARY

The Vice President, Communications and Marketing, will have oversight responsibility for the external and constituent-focused communications and marketing functions of the Pulmonary Hypertension Association’s headquarters and field offices. As our staff and external communications have grown, the need for a strategic vision and day-to-day leadership of PHA’s many communications functions has become evident. The Vice President will ensure that our messaging is dynamic and consistent across all platforms and audiences, including our constituents (patients, family members and medical professionals), and external audiences (media, funders, non-PH specialist health care providers, and the general public).

The individual in this position will interface with all departments within PHA, and supervise the directors/managers of departments directly responsible for communications and marketing, currently: Advocacy and Awareness, Communications (media relations), Early Diagnosis and PHAware campaigns, Publications and Web Services.

ESSENTIAL DUTIES AND RESPONSIBILITIES

Provide strategic leadership on PHA’s communications and marketing initiatives in order to increase its visibility across key stakeholder audiences and expand the public’s knowledge of pulmonary hypertension
  • Develop and implement an integrated strategic communications plan to advance the Pulmonary Hypertension Association’s brand identity, programs and priorities
  • Create a marketing/public relations strategy that will enable PHA leadership to cultivate and enhance meaningful relationships with targeted, high-level external audiences, including the media and key influencers
  • Identify opportunities, challenges and emerging issues. In collaboration with leadership team and staff identify internal and external communications opportunities and solutions; define and execute appropriate strategies to support them
  • Develop and seize marketing opportunities to extend PHA’s brand
  • Serve as communications and marketing counselor to PHA leadership
Develop and raise PHA’s profile in the media
  • Serve as a spokesperson and lead point person on media interactions that help promote and/or impact the organization
  • Prioritize media opportunities, and prepare talking points, presentations and other supporting material as needed
  • In collaboration with the Director of Communications, actively engage, cultivate and manage media relationships to ensure coverage surrounding PHA programs, special events, public announcements, and other projects
Ensure that communications are cohesive across all departments; supervise and mentor staff in multiple communications departments
  • Direct all PH and PHA awareness-raising activities, ensuring that our message and brand are compelling and consistent throughout headquarters and field offices
  • Direct development of all PHA communications, including PHA’s website and social media, annual report, newsletters, and marketing collateral materials.
  • Oversee delivery of communication and marketing support to field offices to further their fundraising efforts and PHA’s local visibility
  • Recruit and mentor a communications team, achieving a high level of performance using a supportive and collaborative approach on a consistent basis
  • Supervise the day-to-day activities of PHA’s communications functions, including budgeting, planning and staff development
  • Establish and monitor staff performance goals, establish priorities, conduct annual performance appraisals, and administer salary adjustments

KNOWLEDGE, SKILLS AND ABILITIES REQUIRED

  • Bachelor's degree in journalism, communications, or related field is required; advanced degree preferred
  • Minimum of five years in senior management either in-house or with an agency, planning, writing, editing, and producing a wide array of print and online material
  • Experience building, mentoring and coaching a team of communications specialists
  • Demonstrated leadership in managing a comprehensive strategic communications, media relations, and marketing program to advance an organization's mission and goals
  • Ability to utilize social media and new media technologies in support of an organization’s mission
  • Capacity to build relationships with top tier reporters and editors to achieve high-impact media placements
  • Exceptional writing and oral presentation skills
  • Ability to influence and engage direct and indirect reports and peers
  • Innovative thinker, able to translate strategic thinking into action plans and output
  • Excellent judgment and creative problem solving skills
  • Ability to make decisions in a changing environment and anticipate future needs
  • Energetic, flexible, collaborative, proactive, results-oriented
  • Passion for promoting a mission-driven organization

WHAT WE OFFER

A competitive salary; generous benefits, including employer-paid individual health insurance premiums and a transportation subsidy; location in downtown Silver Spring (bus and Metro accessible); collegial work environment. We also provide quality training opportunities to enhance the skills of our staff.

HOW TO APPLY

Please send a responsive cover letter, résumé, two relevant writing samples and your salary expectations to Adrienne Dern, Interim VP of Communications, AdrienneD@PHAssociation.org. Your subject line should read “VP Communications.” Applications without salary information will not be considered. We look forward to hearing from you, but no phone calls, please.


Vice President, Human Resources and Training

The Pulmonary Hypertension Association (PHA), a dynamic, highly respected organization serving pulmonary hypertension (PH) patients, their family members and the medical community, is seeking a Vice President, Human Resources and Training. This position is newly created to meet the demands of a growing organization.

Pulmonary hypertension, a life-threatening illness described as high blood pressure in the lungs, affects people of all ethnic backgrounds and ages. Without proper diagnosis and treatment, a patient’s average lifespan is 2.8 years.

PHA provides high level medical and patient education, raises awareness of PH in the general public and medical community, advocates for legislation, supports research, and helps patients connect with others to end their isolation.

PHA is headquartered in Silver Spring, Md., with a staff of 40. In addition, the organization currently has four fund-raising field offices in major metropolitan areas whose work is supported by headquarters staff. Current staffing of the chapters is approximately 16 and new chapters will be forming in 2015 and beyond. PHA has experienced exceptionally rapid growth over the past five years, and particularly in the past two with the addition of our field offices. While these are positive changes, they have altered the dynamics of the organization and our new VP will be involved with addressing the effects of these transitions.  

The Vice President, Human Resources and Training, reports to the President and CEO.The VP supervises, in a dotted line relationship shared with VP of Finance, the Associate Director of Finance and Benefits.

This position requires occasional weekend and evening work, and limited domestic travel.

GENERAL POSITION SUMMARY

Provide leadership and coordination for all organizational Human Resource functions. Develop and implement an organizational human resource strategy and programs with a special emphasis on training at the management and line staff levels.

ESSENTIAL DUTIES AND RESPONSIBILITIES

HR Management
  1. Create and implement a strategic recruitment and hiring plan for headquarters and field staffs.
  2. Develop and manage annual budgets for the department and perform periodic cost and productivity analyses.
  3. Recommend and establish HR policies and procedures.
  4. Develop and oversee a comprehensive grievance policy and mediate workplace disputes.
  5. Evaluate procedures and technology solutions to improve human resources data management.
  6. Recommend and maintain an organizational structure and staffing levels to accomplish organizational goals and objectives.
  7. Understand the organizational culture and provide recommendations on further strengthening it to meet PHA goals and objectives.
  8. Evaluate and recommend human resource outsourcing opportunities and identify potential vendors.
  9. Establish and implement short- and long-range departmental goals, objectives, policies, and operating procedures.
Compensation & Benefits
  1. Oversee the design and implementation of our compensation strategy and programs.
  2. Direct the administration of benefit programs including health, retirement, death, disability, and unemployment.
  3. Evaluate and recommend improvements to benefit programs.
Training
  1. Create an organizational strategic training and development plan to meet personal, professional, and organizational needs of PHA employees.
  2. Develop and deliver a training program to strengthen supervisors’ management expertise.
  3. Work with supervisors to establish and implement training for their line staff.
  4. Evaluate effectiveness of training provided for and by managers and of line staff.
Compliance
  1. Coordinate organizational equal opportunity programs to ensure understanding and compliance.
  2. Oversee compensation programs to ensure regulatory compliance and competitive salary levels.              

KNOWLEDGE, SKILLS AND ABILITIES REQUIRED

  1. Knowledge of change management.
  2. Knowledge of federal, state, and local employment, wage and salary laws, and regulations.
  3. Ability to interpret and provide sound advice on the application of EEO/AA laws.
  4. Ability to assess training needs and develop responsive solutions.
  5. Knowledge of organizational development theory and practices.
  6. Experience in design, development and implementation of salary administration plans and benefit programs.
  7. Experience examining and re-engineering operations and procedures, formulating policy, and developing and implementing new strategies and procedures.
  8. Knowledge of computerized information systems used in human resources applications.
  9. Strong professional ethics which includes dealing with confidential staff and patient information.
  10. Minimum education level:
    1. BA in HR or related degree plus at least five years HR experience
  11. Preferred education/certification level:
    1. Master’s Degree in Human Resources and at least five years experience in a senior-level non-profit Human Resource position.
    2. SHRM-CP™ certification

WHAT WE OFFER

A competitive salary; generous benefits, including employer-paid individual health insurance premiums and a transportation subsidy; location in downtown Silver Spring (bus and Metro accessible); collegial work environment. We also provide quality training opportunities to enhance the skills of our staff.

HOW TO APPLY

Please send a responsive cover letter, résumé, and your salary expectations to Rino Aldrighetti, President and CEO, at RinoA@PHAssociation.org.  Your subject line should read “VP Human Resources.” Applications without salary information will not be considered. We look forward to hearing from you, but no phone calls, please.


Program Assistant, PH Care Centers

GENERAL POSITION SUMMARY

Provide daily program support and assistance; help guide PHCC Review Committee operations through collection of reviewer availability, organization of site reviews and scheduling of travel (including flight, hotel and ground transportation).

ESSENTIAL DUTIES AND RESPONSIBILITIES

  1. Receive and review communications with PHCC applicants in order to process applications.
  2. Compile all relevant documents to guide PHCC Reviewers conducting site visits.
  3. Coordinate site visits for PH Care Center accreditation, including ensuring all required meetings are scheduled with the relevant professionals at the applicant sites and providing all documentation and travel services to the site reviewers.
  4. Create and distribute (through email and mailing services) site visit packets to predetermined Site Reviewers.
  5. Management of the PH Care Centers governance structure, including management of three committees (Oversight, Site Review, and Patient Registry) including teleconference scheduling, planning, and coordination of action items. Liaison to the PHA Board of Trustees, who ultimately oversees the program.
  6. Provide assistance during teleconferences and webinars.
  7. Aid the design revisions and updates of the PHCC website.
  8. Collaborate with PHA staff to deliver timely responses to external (including email and telephone) inquires about the PHCC program.
  9. Other duties as assigned.

KNOWLEDGE, SKILLS AND ABILITIES REQUIRED

  1. Experience in assisting multiple projects with varying deadlines.
  2. Knowledge of basic computerized information systems used in typical work environments (Word, PowerPoint, etc.).
  3. Work requires professional written and verbal communication in addition to interpersonal skills.
  4. Ability to collaborate and interact with physicians and non physician clinicians on a daily basis.
  5. Willingness to participate in group meetings.
  6. Strong professional ethics which include approaching others in a tactful manner; reacting well under pressure; treating others with respect and consideration; dealing with confidential staff and patient information.
  7. Work requires willingness to work a flexible schedule.
  8. Minimum requirement to apply: BA at a recognized four year undergraduate institution. Demonstrated training experience applicable to the essential duties and responsibilities
  9. Preferred: BA in Health related studies at a recognized four year undergraduate institution. At least one year of experience in a health organizational setting.

REPORTING RELATIONSHIPS

  1. Reports to: PHCC Program Manager and the Director of Medical Services
  2. Supervises: N/A

WORKING CONDITIONS

Working conditions are normal for an office environment. Work may require more frequent than normal weekend and/or evening work.

WHAT WE OFFER

A competitive salary; generous benefits, including employer-paid individual health insurance and a transportation subsidy; location in downtown Silver Spring (bus and Metro accessible); and, a collegial work environment. We also provide quality training opportunities to enhance the skills of our staff.

HOW TO APPLY

Please send a cover letter with salary expectations, résumé, and writing sample to Michael Gray, Director of Medical Services & Education, at MichaelG@PHAssociation.org. Applications without salary information will not be considered. We look forward to hearing from you, but no phone calls, please.


Development Manager, California Chapter

GENERAL POSITION SUMMARY

This employee will be an integral member of PHA's California Chapter team. The employee will focus on securing new revenue, fundraising events administration and logistics that will include: event planning, event production and event administration. Fundraising events may include: galas, golf tournaments, walks and other special events in a very intensive start-up environment. The employee will also be responsible for recruiting and managing volunteer teams and committees in several venues throughout the state.

ESSENTIAL DUTIES AND RESPONSIBILITIES

Fundraising
  • Identify, cultivate, solicit, and close new corporate, foundation, and individual gifts
  • Recruit in-kind donations of products and services appropriate for the Association's fundraising campaigns to reduce expenses
  • Launch and strengthen partnerships with local communities and businesses to grow third-party fundraising program
  • Secure media partnerships, including television, radio, print, and online partnerships
  • Work closely with the Executive Director and Special Events Manager to achieve the Chapter's annual revenue goals
Event Planning and Production
  • Manage up to 12 events per year
  • Must be able to anticipate project needs, discern work priorities, and meet deadlines with little supervision
  • Negotiate and manage vendor contracts and book event space, arrange food and beverage, order supplies and audio/visual equipment, make travel arrangements, order event signs and ensure appropriate décor
  • Conduct research, make site visits, and find resources to help staff and volunteers make decisions about event possibilities
  • Propose new ideas to improve the event planning and implementation process
  • Serve as liaison with vendors on event-related matters
  • Assist with managing on-site production and clean-up for events as necessary
  • Keep track of event finances including check requests, invoicing, and reporting
  • Prepare and modify event contracts as requested; manage guest list, call downs and RSVP's

KNOWLEDGE, SKILLS AND ABILITIES REQUIRED

  • Bachelor's degree preferred; significant work experience can substitute for a degree
  • 3 years' experience coordinating special events, preferably fundraising events
  • Excellent communication skills including writing, proofreading, and speaking
  • Ability to manage multiple projects and work assignments from a variety of staff and volunteers
  • Ability to accomplish projects with little supervision
  • Excellent customer service skills and high expectations for quality
  • Proficient using the latest versions of Microsoft Word, Excel, PowerPoint; skilled at mail merges, email outreach and web searches
  • Ability to work with a wide variety of constituents including PH patients, medical professionals, caregivers and donors
  • Comfortable asking for and achieving in-kind commitments
  • Strong interpersonal skills (verbal and written) necessary in order to communicate diplomatically and effectively with volunteers, donors and staff
  • Volunteer management experience preferred
  • Strong professional ethics

WORKING CONDITIONS

  • Travel to meetings and events as necessary throughout the Bay Area and California
  • Work nights and weekends as necessary to attend and oversee meetings and events
  • Must have access to reliable transportation and ability to travel to meetings or events at different locations
  • Use of computer required
  • Sitting, bending, reaching, and walking
  • Some heavy lifting (50lbs) may be required

WHAT WE OFFER

A competitive salary; generous benefits, including employer-paid individual health insurance premiums; highly desirable location in San Francisco's Financial District (BART accessible); and, a collegial work environment. We also provide quality training opportunities to enhance the skills of our staff.

HOW TO APPLY

Please send a cover letter, résumé and salary expectations to Im Senephimmachack, Executive Director, at ImSenephimmachack@phassociation.org; include “Development Manager” in the subject line. We look forward to hearing from you, but no phone calls please.


Event Manager (Endurance), based out of the Midwest Chapter

This person will be an integral member of Pulmonary Hypertension Association team. He/she will focus on fundraising events administration and logistics that will include: event planning and production and event administration with a primary focus of expanding and supporting the
PHA’s endurance program Team O2 breathe. He/she will also be responsible for recruiting and managing volunteer teams and committees. He/she will be responsible for recruitment, communications and support of Team O2 breathe members nationally and expanded “official charity” offerings/program.

ESSENTIAL DUTIES AND RESPONSIBILITIES

  • Manage multiple events per year, both for the Midwest Chapter and Team O2 breathe.
  • Must be able to anticipate project needs, discern work priorities, and meet deadlines with little supervision
  • Negotiated and manage vendor contracts and book event space, arrange food and beverage, order supplies and audiovisual equipment, make travel arrangements, order event signs and ensure appropriate décor (floral, linens, color schemes, etc.) to meet the quality expectations of the Association
  • Coordinate and implement elements of promotional and marketing activities to create brand awareness and generate program interest
  • Execute informational meetings and presentations involving public speaking
  • Recruit and manage volunteers helping to motivate and support them in achieving their fundraising and training goals
  • Create new and utilize current fundraising materials required for successful implementation for campaign
  • Responsible for all participant support, communication and assistance
  • Develop and build base of volunteers, coaches, mentors, and honored patients and implement retention plan.
  • Oversee fundraising strategy and provide guidance and support for all participants
  • Build and implement Corporate Sponsorship/Partnership opportunity, including corporate team engagement
  • Accountable for managing Endurance platform budget and meeting assigned benchmarks.
  • Assist with preparing budgets and provide periodic progress reports
  • Keep track of event finances including check requests, invoicing, and reporting
  • Prepare and modify event contracts as requested

KNOWLEDGE, SKILLS AND ABILITIES

  1. Bachelor's degree preferred; significant work experience can substitute for the degree
  2. Experience coordinating special events, preferably fund raising events
  3. Working knowledge of endurance charity programming.
  4. Excellent communication skills including writing, proof reading, and speaking
  5. Ability to manage multiple projects and work assignments from a variety of staff and volunteers
  6. Ability to accomplish projects with little supervision
  7. Excellent customer service skills and high expectations for quality
  8. Proficient using the latest versions of Microsoft Word, Excel, PowerPoint, Access and mail merges, email outreach and web searches
  9. Ability to work a wide variety of constituents including PH patients, medical professionals, caregivers and donors
  10. Comfortable asking for and achieving in-kind commitments
  11. Strong interpersonal skills (verbal and written) necessary in order to communicate diplomatically and effectively with volunteers donors and staff
  12. Volunteer management experience preferred
  13. Strong professional ethics

WORKING CONDITIONS

  • Travel to meetings and events as necessary throughout the Midwest Region
  • Work nights and weekends as necessary to attend and oversee meetings and events
  • Must have access to reliable transportation and ability to travel to meetings or events at different locations
  • Use of computer required
  • Sitting, bending, reaching and walking
  • Some heavy lifting (50lbs) may be required

WHAT WE OFFER

A competitive salary; generous benefits, including employer-paid individual health insurance premiums; and, a collegial work environment. We also provide quality training opportunities to enhance the skills of our staff.

HOW TO APPLY

Please send a cover letter, résumé, and your salary expectations to Geoff Gephart, Executive Director, at geoffgephart@phassociation.org; include “Event Manager (Endurance)” in the subject line. We look forward to hearing from you, but no phone calls, please.  


Database Associate

GENERAL POSITION SUMMARY

The Pulmonary Hypertension Association (PHA) is seeking a Database Associate to assist with the management of donor databases and other software which PHA uses to further its mission. The ideal candidate will have a passion and desire to work in a non-profit environment, understand the importance of data in the execution of PHA’s work and be comfortable working in several databases and online platforms designed for fundraising, donor management, non-profit accounting and marketing. This team member will report to the Associate Director, Database and Training.

ESSENTIAL DUTIES AND RESPONSIBILITIES

  • Assist the Associate Director in the addition of new records and the management of existing records to PHA's primary donor database, The Raiser's Edge. Tasks will include but not be limited to:
    • Gift entry, including donations, memberships, event registrations, merchandise orders and more
    • New addresses and address corrections
    • Event registrants and attendants
    • Constituent interactions
  • Generate ad-hoc and regular queries and reports related to various programs at PHA.
  • Work in several non-profit databases and software products, including Raiser's Edge, Financial Edge, Kintera Sphere, ResearchPoint, FirstGiving, NetCommunity, Crowdrise, and EventBrite.
  • Provide support to PHA staff on questions and problems related to above databases and software products.
  • Assist the Development department in maintaining PHA's good standing for state registrations and tax exemptions.
  • Maintain gift transmittal process.
  • Other duties as assigned.

KNOWLEDGE, SKILLS AND ABILITIES REQUIRED

Required
  • One year working with Raiser's Edge or similar fundraising database. Should be familiar with working in records, querying, exporting and reporting.
  • Strong attention to detail.
  • Ability to work in several programs at the same time.
  • Advanced knowledge of Microsoft Excel.
  • Comfortable working on many different types of tasks in a given day and working with many different departments.
Preferred
  • Comfortable importing data into a database
  • Knowledge of Microsoft Access
  • Familiarity with non-profit and/or general accounting procedures

WHAT WE OFFER

A competitive salary; generous benefits, including employer-paid individual health insurance premiums and a transportation subsidy; location in downtown Silver Spring (bus and metro accessible); and, a collegial work environment. We also provide training to enhance the skills of our staff.

HOW TO APPLY

Please submit a cover letter, resume, and salary requirements to Randall McLeod, Associate Director, Database and Training, at RandallM@PHAssociation.org. Submissions without salary information will not be considered. We look forward to hearing from you, but no phone calls please.


Questions or concerns? Please contact Jennifer Freedman, PHA's Associate Director of Finance & Benefits, at HR@PHAssociation.org.

Updated 1/20/2015

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.