Patient Mentor Profile

mary

Mary

Diagnosed in 2012

"I am a mother of three boys. I worked in the medical laboratory field for 20 years. I love animals and spending time with my horses. I have been involved in a clinical trial from the very beginning of my diagnosis. I am on oxygen 24/7."

About Mary:

  • Born in 1964
  • Lives in Texas
  • Type of PH: Associated with Scleroderma
  • Languages: English

Mary feels comfortable discussing her experiences with:

  • newly diagnosed patients
  • infused medication
  • oral medication
  • supplementary oxygen
  • depression and mental health issues
  • communicating with medical personnel
  • traveling with PH
  • organizing medical records
  • local support groups
  • online communities (PHA email groups, message boards, chats)

Contact Mary: MaryW@PHAPHriends.org

 
Disclaimer: PHA PHriends are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.