Why Plan a PHA Special Event

“One main reason that I get involved through special events is because my PH is genetic…if I can continue working to raise funds for and awareness of this disease, then maybe the next generation won’t have to suffer as much. So much has been done in recent years, and PH treatment options now are just unbelievable... By continuing to stay involved, one day we can find the cure.”

Wendy Bockhorst
Arizona Cure PH Golf Tournaments, Arizona Cure PH Casino Night
Support Group Leader & PH patient

Wendy Bockhorst, left
WendyBockhorst (left), in memoriam

You’re committed to making a difference and changing the history of this life-altering disease. Ultimately, your involvement in PHA special events means raising awareness and funds to put a spotlight on pulmonary hypertension, and build a better world for all those living with this illness.

Your efforts will support:

  • Essential Patient Services: PHA provides a community of hope as well as support and education for patients and families affected by PH. Your efforts also help us strengthen our PH support group network, so that instead of feeling alone, patients are empowered, connected and informed.

  • Peer-Reviewed Medical Research: By sponsoring cutting-edge research, PHA actively works for a PH cure. All three of PHA’s research grants are used exclusively to fund PH research, and leverage additional funding through partnerships with the American Thoracic Society, the National Heart, Lung, and Blood Institute and the American Heart Association.

  • Public Awareness of PH: As a volunteer event coordinator, you help PHA produce programming that encourages and facilitates local news coverage about PH, thereby raising awareness and preventing misdiagnosis.

  • Legislative Advocacy for PH: Your efforts help PHA’s grassroots advocates build support for the Tom Lantos PH Research and Education Act and other PH-related legislation, securing an ever-growing amount of funding for PH research and awareness initiatives.

 

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.