Behind the Scenes: Meet Our Insurance Volunteer
What is your connection to PH?
I was diagnosed with primary pulmonary hypertension in 2002 when I found myself in an emergency room due to shortness of breath. Six days later I was told I had pulmonary hypertension.
What type of insurance industry experience do you have?
I worked for 15 years for a large insurance company in Connecticut before I became ill with PH. I held many positions within the company over the past 15 years, from claim payment to medical review. My last job was manager of an advocacy department handling executive office and Department of Insurance complaints.
How did you get involved with PHA’s Insurance Advocacy and Education Program?
Once I was feeling better, my daughter and I started going to PH conferences. I learned so much about my illness, treatments, and things I can do to have the best quality of life possible. At all the conferences we went to, I would hear people asking questions about insurance coverage for medication or other treatments they needed in order to manage their PH. My daughter would always say to me, “Mom, you should tell them about your insurance experience. I think you could help people with insurance problems.” I finally took my daughter’s advice and contacted PHA in August 2009.
What types of projects are you working on at PHA?
I have been working with PHA’s Insurance Advocacy and Education Program, helping to monitor the chats/boards for any questions or concerns regarding insurance coverage. I have also been developing educational material on how to file a Department of Insurance complaint. The material includes tips on what information to include when you file a complaint as well as a template letter.
Can you tell us some more about yourself?
I believe we will stay healthy if we have a good attitude, keep busy, volunteer where and when we can, and praise God for each day He gives us. I did not think I would be here one year after my diagnosis, so to be here seven years later is just unbelievable and wonderful. My doctor always tells me, “Carol, you are doing so well.” I always have hope and I shoot for the stars when it comes to finding a cure.