August 3, 2010


PHA News
Latest Blog Post

Carol Vreim

Carol Vreim...

Today is Carol Vreim’s last day at PHA…
She certainly has been a tremendous asset to PHA as a part-time employee for the past several years but her life and work have been intertwined with the PH community since the 1970s. » Read more

What's In This Issue

» Spotlight On... District Visits
» Get Smart
» Website Discoveries
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» Also of Interest
» PH News Headlines

Spotlight On...

Merle Reeseman and Rep. English

Spread PH Awareness: Visit Your Members of Congress

Members of Congress are in their home districts in August, and they need to hear from you. Request a meeting with your elected officials and ask them to fight back against PH by co-sponsoring the PH Research Act. » Learn more

Get Smart

PHA special event on Great Day Houston

e-Learning Event: Working Media into Your Special Event

Thursday, August 19, 3:00 p.m. ET, Webinar
Learn how media coverage can increase your community’s awareness of PH and involvement in your event. » Register now
Posted » Watch Event Planning 101 webinar

    PHA on the Road family programming

New Family Programming for PHA on the Road

This year's PHA on the Road forums will feature a session entitled “Caring for a Child with PH (Information for Parents).” Both forums will also have a “Kids’ Room” with activities and adult supervision while sessions are in progress. » Learn more about family programming

Website Discoveries by Kathryn Frix

emergency responders

Things I Found: Preparing for Emergency Situations

Emergencies don’t give you a heads up so you can prepare. They emerge and you react. This week, I found resources to help you prepare for PH emergencies and have the peace of mind that being prepared can provide. » Read more

PH Community Scoop

Lil "Catfish" Long

PH Awareness in the Mississippi Bayou

When PH patient Lil “Catfish” Long embarked on a lifestyle change last summer through daily swimming exercises, her husband Henry Earl was so impressed by her progress that he began telling friends she’d be able to swim across the Mississippi River within the year. » Read more

From the PHA News Desk
    template letters

Help Us Expand Our Template Letter Collection

Send in Your Successful Insurance Letters
If you have a letter that has proved effective when communicating with insurance companies, share it with the PH community. Contact or visit the template letter page

planned giving

Out-of-the-Ordinary Charitable Giving

Consider Exercised Stock Options, Tangible Personal Property and more. Access PHA’s E-brochure and learn about some nontraditional assets you can donate to charity. For help navigating the many aspects of gift planning, visit PHA’s Planned Giving website.

Medical Community Bulletin

PHA Preceptorship Program

Medical Professionals: Attend a Preceptorship Program

PHA's day-long highly interactive preceptorships for medical professionals who care for PAH patients will be taking place in Baltimore, Md.; Chicago, Ill.; Houston, Texas; Los Angeles, Calif.; New York, N.Y.; Philadelphia, Penn. and San Francisco, Calif. » Register now

Also of Interest

health insurance

New Regulations Make It Easier to Appeal Claim Denials

In July, the government issued new regulations that guarantee consumers the right to appeal denials directly to their insurers and then, if necessary, to external review boards – even for self-insured companies. Read more | Find tools to help you make appeals

    doctor holding stethoscope

The Patient Protection and Affordable Care Act Includes Preventative Services

If you enroll in a new health plan on or after September 23, 2010, the plan will be required to cover preventative services such as mammograms and colonoscopies without charging a deductible, copayment or coinsurance. » Learn more

PH News Headlines

» Nicky Roberts Tribute Focuses On Pulmonary Hypertension Risks

» 12-Year-Old & His Dad Break Speed Record For States' High Points for PH Awareness

» Pfizer's Revatio Weighed by U.S. FDA for Children With PAH

» Medical Edge: Pulmonary Hypertension

» More News

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Upcoming Events

Aug. 14, 2010
2nd Annual PHA Cut-a-Thon
Bridgton, Maine

Aug 14, 2010
10th Annual MN Support Group Picnic
Maplewood, Minn.

Aug 14, 2010
Cocktails 4 Circulation PHA Pubcrawl
Ventura, Calif.

» Go to the Events Calendar

Conference Video

9th International PH Conference and Scientific Sessions video

The 9th International PH Conference video is now live! View the video to get a taste of the Conference experience.

Quick Poll Results from Last Week

Do you have a copy of PHA's Patient's Survival Guide?

74.2% - Yes
22.6% - No
3.2% - No, but I'm going to order the latest edition!

Look for a new question in the next issue!

PHA's New Store Item: On sale for members ($3)

Need more information? Contact
Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.