Patient Mentor Profile

Evelyn Crespo

Evelyn

Diagnosed in 1999

"I'm Puerto Rican, retired, and I've been living with PH for many years. I am very active doing volunteer work to help other PHers. I enjoy traveling, music and movies."
Lee mi perfil en español

About Evelyn:

  • Lives in Texas
  • Type of PH: Associated with Scleroderma and Mixed Connective Tissue Disease
  • Languages: English, Spanish

Evelyn feels comfortable discussing her experiences with:

  • infused medication
  • oral medication
  • supplementary oxygen
  • working with PH
  • traveling with PH
  • communicating with medical personnel
  • organizing medical records
  • local support groups
  • online communities (PHA email groups, message boards, chats)

Contact Evelyn: EvelynC@PHAPHriends.org

 
Disclaimer: PHA PHriends are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.