Patient Mentor Profile

Wendy Bond

Wendy

Diagnosed in 2008

"I'm a single-mother with  biological and adopted children.  As you can imagine, I am very busy during the days....and nights now. I often attend support group meeting and am involved in fundraising."

About Wendy:

  • Born in 1976
  • Lives in New York
  • Type of PH: Idiopathic
  • Languages: English

Wendy feels comfortable discussing her experiences with:

  • adoption and family planning
  • oral medication
  • depression and mental health issues
  • traveling with PH
  • communicating with medical personnel
  • organizing medical records
  • local support groups
  • online communities (PHA email groups, message boards, chats)

Contact Wendy:

Fill out my online form.
Disclaimer: PHA PHriends are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.