Patient Mentor Profile

Carson Smith

Carson

Diagnosed in 2002

"I am a full-time graduate student and I work full-time. I have had PH since the middle of high school. When I have time I love salsa dancing, yoga and traveling."

About Carson:

  • Born in 1986
  • Lives in Missouri
  • Type of PH:Associated with Pulmonary Veno-occlusive Disease
  • Languages: English

Carson feels comfortable discussing her experiences with:

  • oral medication
  • working with PH
  • traveling with PH
  • communicating with school personnel about PH
  • communicating with medical personnel
  • communicating with children about PH
  • online communities (PHA email groups, message boards, chats)

Contact Carson: CarsonS@PHAPHriends.org

 
Disclaimer: PHA PHriends are available to provide hope and support to PH patients and caregivers. They are not intended to provide medical advice on individual matters, which should be obtained directly from a physician.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.