December 8, 2010

       
PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post


Debbie with Paula and Paolo Mendez

Our Partners in Brazil…

PHA's Director of Volunteer Services, Debbie Castro, spent the Thanksgiving weekend in Sao Paolo, Brazil. She had been invited to speak at the third annual conference of the Associação Brasileira de Amigos e Familiares de Portadores de Hipertensão Arterial Pulmonar (ABRAF)... » Read more

What's In This Issue


» Spotlight On... Family and Friends
» Get Smart
» Living Better with PH
» PH Community Scoop

» From the PHA News Desk
» Also of Interest
» PH News Headlines

Spotlight On...


A man helping his friend or family member

Are You a Family Member or Friend of a PH Patient?

If so, we want to hear from you! Whether you provide occasional emotional support or ongoing care, you are a vital part of the PH community. We want to identify your needs and create resources for YOU. To help us to do so, fill out our survey.

Get Smart
    PHA Classroom logo

New Sessions in PHA Classroom for December

Just in time for the holidays, new recordings are available in the PHA Classroom. We feature a little bit of everything, including medically led sessions, patient- and family-led sessions and skill-building workshop recordings from our 9th International PH Conference. » Learn more 



Parent and child

Parents' Support Group Call 

Thursday, Dec. 16, 8:30 p.m. ET
A toll-free, hour-long telephone support group for caregivers of children with PH. Connect with PH parents across the U.S. in real time for support, encouragement and information-sharing. Call in for as long as you prefer. » Read more 

Living Better with PH


Carson Smith

Email a PHA Mentor with Associated PH

Our team of mentors represents a range of associated diseases, including connective tissue disease, congenital heart disease, pulmonary veno-occlusive disease and sleep apnea. Sign in to PHA’s website to browse mentor profiles and begin receiving one-on-one support today. » Find your mentor

PH Community Scoop


Kayla Rubio

Family Grieves, Raises PH Awareness through Concert 

Kerri Rubio is one determined lady. She and her husband Juan are resolute that no other family should have to experience a loss as they have. Their 14-month-old daughter Kayla passed away in August 2008 after battling severe pulmonary hypertension. » Read more 

From the PHA News Desk
    LaVern Cash

PHA’s Congressional Luncheon — Victory and Opportunity

On Nov. 17, more than 100 participants gathered at PHA’s annual Congressional Luncheon, including legislative staff, PH patients, medical professionals and supporters. Among the luncheon presenters was Kimberly Ellis Thompson, representing Rep. Kevin Brady, who moved the audience to tears. » Read more



Tom Lantos

What Could You Do with $5,000?

PHA wants to help you receive a grant of up to $5,000 to help raise awareness of PH or develop or expand services for patients. Applications for Tom Lantos Innovation in Community Service Awards are being accepted until Jan. 3, 2011. More information is available online, including a secure online application. » Learn more and apply now



Alex Flipse & Diane Ramirez

Together We Make So Much Possible

PHA invites everyone whose life has been touched by PH to come here for hope. We change lives by making support, education and opportunities for involvement available. Help us make all this and more possible by donating now to our end-of-year campaign. » Donate now

Also of Interest


stethoscope

Medicare Resources at Your Fingertips

Medicare’s Fall Open Enrollment ends on Dec. 31. If you haven’t already brushed up on your Medicare knowledge, now is the time. To review your Medicare basics and find links to other helpful resources, visit PHA's online insurance guide.

PH News Headlines


» Holiday Season Brings Memories of a Special Man

» Finding Support for Rare Disorder

» Van Round Completes Keir's Wishes

» Protein May Provide Early Detection and Reversal Treatment for Pulmonary Hypertension

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Upcoming Events

Dec. 18, 2010
Baltimore Blast (Professional Soccer Team) Fundraiser
Baltimore, Md.

March 26, 2011
The Woodlands CrawPHish Festival
The Woodlands, Texas


» Go to the Events Calendar

Video

Determination in the Delta and Beyond

Watch Lil "Battle" Long triumphantly conquer the Mississippi River as she swam across it to spread PH awareness in an event she dubbed “The Long Battle for Nicky.”

Quick Poll

Who is your biggest source of support as a PH patient?

» Take our Quick Poll!

Medical Professionals: Promote your event through Building Medical Education in PH


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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.