March 23, 2011

PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President


Our hearts go out to all those involved in Japan's unimaginable disaster ... particularly our friends at PHA Japan. » Read more

What's In This Issue

» Spotlight On... 50 State Media Challenge
» Get Smart
» Living Better with PH
» PH Community Scoop

» Medical Community Bulletin
» Also of Interest
» PH News Headlines

Spotlight On...

50 State Media Challenge: 13 States and Counting

Since the beginning of 2011, PHers have generated 14 news articles in 13 states. In April, let’s bring those numbers to 25 articles in 20+ states! See if your state has a media success | Find out how you can get involved in the challenge | Learn how to get your story covered

Get Smart

Media Matters: Working with the Media to Raise Awareness

Monday, March 28, 3:00 p.m. ET, Webinar
If you missed the March 1 Media Matters webinar with Environics Communications, join us on March 28 for a second chance at this unique skill-building opportunity. Get tips on pitching your story, giving an interview and more. » Register now


PHA on the Road - Register Early!

Registration is now open for the PHA on the Road forums in Seattle (June 4), Pittsburgh (June 11), St. Louis (June 11) and Minneapolis (June 18). Space is limited and registration is required so early registration is recommended to accommodate all who wish to attend. » Register now

Living Better with PH

Find a Patient Mentor by Treatment or Common Interest!

You can search for a PHA email mentor by topic of interest, including type of medication, pulmonary rehabilitation, depression and mental health issues, and more. Sign-in to PHA’s website to browse mentor profiles and begin receiving one-on-one support today. » Read more

PH Community Scoop

Join in on the Fun and Spur a Cure for PH!

Spur a Cure for PH, a western-themed evening of dinner and entertainment in Phoenix, Ariz., is coming up on April 9. With a beautiful desert setting, delicious food and performance by Nashville recording artist Sheylyn Jaymes, what more could you ask for? » Read more


Thank You, February and March Event Planners!

To those who made February and March eventful, we extend a big thanks: Fiesta de Amor con Propósito (Brooklyn, N.Y.); 4th Annual Fish Fry (San Diego, Calif.); Posh Little Closet Consignment Sale (Ormond Beach, Fla.); A PHabulous Fundraiser at Kosmima European Jewelry (Denver, Colo.). » Learn more about special events

Join a PHA Support Group

PHA support groups are holding all kinds of interesting meetings this spring. This April, the Newark Beth Israel group is practicing sound relaxation while listening to Harp and Himalayan Singing Bowl music and the Midlands, S.C., group is hosting a Certified Laughter Instructor. » Find a group near you
Medical Community Bulletin

PH Resource Network Gets a New Name

PH Resource Network recently changed its name to PH Professional Network (PHPN) to better reflect its increasingly diverse membership of pharmacists, physician assistants, nurse practitioners, respiratory therapists, physical therapists, dietitians and more. Over the next year, we will be transitioning our materials to reflect this change. » Learn more about PHPN


PH Professional Network Symposium: Registration Open!

Registration for the 2011 PH Professional Network Symposium is now open. The first 300 PH-treating allied health professionals with an active, paid PH Professional Network (formerly PH Resource Network) membership register for FREE. Don’t wait – register early! » Register now

PHA Online University Course: Hemodynamic Parameters and Right Ventricular Failure in PAH

Hosted by Arlene Schiro, RN, ACNS, BC, ACNP, this course provides allied health professionals with an explanation of the hemodynamics and right ventricle’s function in patients with PAH. This course is available for FREE CME Credits following completion of a post-test and evaluation. » Learn more
Also of Interest

Rare Disease Day Victories

Thank you to all the PHers who participated in Rare Disease Day through local media outreach, Facebook posts, calls to local elected officials and more! Working together, we’re making rare disease common knowledge. » Read about Rare Disease Day victories


Stop NIH and CDC Funding Cuts!

Congress still hasn’t finalized the 2011 federal budget. With $1 billion+ cuts to the National Institutes of Health and Centers for Disease Control on the table, our voices matter. Contact your representative and two senators. Ask them NOT to cut funding for the NIH and CDC in the FY11 budget. » Take action today

PH News Headlines

» Guest Commentary: Imagine Solutions Brother and I Grew 'Through' Medical Crisis

» Harriet in the Swim for Charity

» The Woodlands CrawPHish Festival Will Be Held March 26

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Upcoming Events

March 25, 2011
PIM-1: A New Hope for the Diagnosis and Treatment of PH
webinar: online and phone

March 26, 2011
The Woodlands CrawPHish Festival
The Woodlands, Texas

March 28, 2011
Media Matters: Working with the Media to Raise Awareness
webinar: online and phone

» Go to the Events Calendar

In Honor of Our Lives

Need more information? Contact
Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.