PHANews Archives

The following archives are provided for historical purposes only. Given the changing nature of the web, some links may have expired, but each past issue will still give you a sense of what was going on in the PH community at any given time.

2014 | 2013 | 20122011 | 2010 | 2009 

2010

December 8, 2010

  • Spotlight On... Family and Friends
  • Get Smart
  • Living Better with PH
  • PH Community Scoop
  • From the PHA News Desk
  • Also of Interest
  • PH News Headlines

November 23, 2010

  • Spotlight On... Caregivers
  • Get Smart 
  • Website Discoveries 
  • PH Community Scoop
  • Medical Community Bulletin
  • Also of Interest
  • PH News Headlines

November 10, 2010

  • Spotlight On... PH Blogging Day Nov. 16
  • Get Smart
  • Living Better with PH
  • PH Community Scoop
  • From the PHA News Desk
  • Medical Community Bulletin
  • Also of Interest
  • PH News Headlines

November 4, 2010 e-Learning Events Special

  • Medicare Part D and Enrollment: Choosing a Plan that Works for You
  • Learn to Keep the PH Blues Away
  • Get Your Innovative Idea Funded

October 27, 2010

  • Spotlight On... PHA's Congressional Luncheon
  • Get Smart
  • Website Discoveries by Kathryn Frix
  • PH Community Scoop
  • From the PHA News Desk
  • Medical Community Bulletin
  • PH News Headlines

October 13, 2010

  • Spotlight On... Special Events Walks
  • Get Smart
  • Living Better with PH
  • From the PHA News Desk
  • Medical Community Bulletin
  • Also of Interest
  • PH News Headlines

September 28, 2010

  • Spotlight On... PH Patient on Local TV Show
  • Get Smart
  • Website Discoveries by Kathryn Frix
  • PH Community Scoop
  • From the PHA News Desk
  • Medical Community Bulletin
  • PH News Headlines

September 15, 2010

  • Spotlight On... PH Patient on
  • Today Show
  • Get Smart
  • Living Better with PH
  • PH Community Scoop
  • From the PHA News Desk
  • Medical Community Bulletin
  • Also of Interest
  • PH News Headlines

August 31, 2010

  • Spotlight On... August District Visits
  • Get Smart
  • Website Discoveries
  • PH Community Scoop
  • From the PHA News Desk
  • Medical Community Bulletin
  • PH News Headlines 

August 17, 2010

  • Spotlight On... PHA Classroom
  • Get Smart
  • Living Better with PH
  • PH Community Scoop
  • From the PHA News Desk
  • Medical Community Bulletin
  • PH News Headlines

August 3, 2010

  • Spotlight On... District Visits
  • Get Smart
  • Website Discoveries
  • PH Community Scoop
  • From the PHA News Desk
  • Medical Community Bulletin
  • Also of Interest
  • PH News Headlines

July 20, 2010

  • Spotlight On... Survival Guide
  • Get Smart
  • Living Better with PH
  • PH Community Scoop
  • From the PHA News Desk
  • Medical Community Bulletin
  • Also of Interest
  • PH News Headlines

back to the top

July 7, 2010

  • July e-Learning Events
  • We Have a Disease to Cure - Support Research
  • Over 1,250 Conference Registrants Rode the Wave to a Cure
  • PHA on the Road is Back
  • New Dates in 30-City Medical Education Tour
  • New Insurance Resources
  • Healthcare Reform Updates
  • Thanks to June Event Organizers
  • Patient's Awareness Efforts Reach Public, Press and Congress
  • PH in the News

June 14, 2010

  • Conference is Next Week - Hope You Can Join Us
  • PHA Mid Year Report
  • Take Action for PH Research in Congress
  • Rep. Himes Co-sponsors PH Bill Due to Persistent PHer
  • PHer to Swim Mississippi River
  • First App for PH Launched
  • Generation Hope Apparel
  • 30-City Medical Education Tour Coming to a City Near You
  • PH Research Opportunities
  • PH in the News

June 4, 2010 conference Special

  • Mark Your Calendars: Important Deadlines
  • Congratulations to the 2010 PHA Outstanding Member Award Winners
  • Pssst! Have You Heard About the New Resources Debuting at Conference?
  • Conference Scholarship Fund Rises to the Occasion
  • Overheard -- Heartfelt Thanks from Our Scholarship Recipients
  • More Conference Details Emerge...Find Out Online
  • Not Staying Overnight at the Hotel? No Problem!
  • Stay Connected to Conference

May 28, 2010

  • Take Action for NIH Funding
  • Event Coordinators Think Outside Box to Promote Event
  • Thank you, May Event Organizers
  • Largest Conference Exhibit Hall to Date
  • Webinar for Newly Diagnosed Patients
  • PH Research Opportunity
  • PH in the News

May 14, 2010

  • Free Update on PH Treatments
  • PHA's "Exceptional" Fiscal Practices Recognized
  • Find a PH-Treating Pediatrician
  • Pre-Conference Registration Closes June 9
  • Conference Fashion Show Needs Adult Volunteers
  • PHA Signs Coalition Letter Urging Rapic Elimination of All Lifetime Caps
  • Medical Education is Coming to Your Area
  • PH in the News

April 29, 2010

  • New PH Treatment
  • Information and Support for New Patients
  • Parent-to-Parent Telephone Support Group Meetings
  • Healthcare Reform and Medicare
  • Special Events Spring into Awareness-Raising Action
  • Scientific Sessions Advance the Education of Medical Professionals
  • PH in the News

April 23, 2010 Conference Special

  • Overheard Online
  • Medically Led Breakout Sessions Schedule Announced
  • Support Group Facilitators Offer Wealth of Experience
  • New Networking Opportunities
  • ¿Hablas Espanol? Tendremos Recursos Para Ti!
  • Conference Scholarship Program Awards Patients Over $171,000
  • On-Site Patient Services
  • Important Deadlines
  • Chance to Win a Prize Quick Survey

April 19, 2010

  • PH Acronym Decoder
  • FAQ for Newly Diagnosed Patients
  • PH and... Brochures for Patients with Associated Diseases
  • Your Gift Can Be a Lifeline
  • Pediatric & Family Programming at Conference
  • PHA Volunteers Make a Difference
  • Insurance Updates
  • Crawfish, Zydeco and Alligator? Oh my!
  • Invitation for Physicians and Researchers
  • PH in the News
  • We're Moving!

April 5, 2010

  • PH Doctor to Give Advice to SSA
  • Exercise & PH Webinar
  • PHA Expands Support to Caregivers and Families
  • Get Involved at Conference
  • Member Store Special for Spring
  • Orena Alsip Introduces Global Campaign in U.S.
  • New PH Online Support Group Chats in Spanish
  • Healthcare Reform & PH
  • PH in the News

March 25, 2010 Conference Special Edition

  • "Overheard" Online
  • Conference Keynote Speakers Announced
  • Plenary Sessions Line-up
  • Medically Led Breakout Session Speakers
  • Skill Building Workshops
  • Conference Blog RSS Feed
  • Conference Buddy Online Sign-up
  • Notes of Thanks and Remembrance
  • Special Disneyland Ticket Pricing
  • Traveling with PH Webinar
  • Important Deadlines
  • Journeys to Conference Stories 

March 19, 2010

  • More Than 1 Million People Reached by PH Awareness
  • Patients Gain 2nd Senate Bill Co-sponsor
  • Attend Traveling with PH Webinar
  • Thanks to Winter Special Events
  • Welcome New Chat Host Stu Berwick
  • Stay Connected with Conference
  • PH in the News
  • Medical Events Near You

March 5, 2010

  • Kilimanjaro Climbers Reach Summit, Exceed Fundraising Goal
  • Caring Voice Coalition to Assist with PH Disability Claims
  • Show Your Appreciation to Your Loved Ones, Doctors and Nurses
  • A Message to Caregivers
  • Conference Medical Professional Deadlines Extended
  • Year of the Lung Resolution Includes PH
  • PH in the News
  • Get the Latest PH News Daily

February 19, 2010

  • Medical Professionals, Take Advantage of These Conference Opportunities!
  • Path to a Cure Team Begins Its Trek to the Top of Africa
  • Non-Patient Conference Award Provides Scholarship to a PHA Volunteer
  • Well-Deserved Recognition Goes to Committed Dad
  • Get Ready to Raise Awareness on Rare Disease Day
  • Social Security Administration Expands Compassionate Allowance Program
  • PH in the News

February 5, 2010

  • Pittsburgh Unites with Path to a Cure Climbers
  • Coming Soon: the President's Annual State of PHA Address!
  • New Ways to Network at Conference
  • Catch Up on e-Learning Events
  • PH in the News
  • Medical Education is Coming to Your Area!

January 22, 2010

  • Get Ready to Ride the Wave to a Cure
  • Small Steps Toward Making a Big Difference in Your Life
  • Get Acquainted with PHA's New Website
  • Generation Hope Unites with Path to a Cure Climbers
  • Insurance Brainstorm for Conference
  • Extra Help for More Low-Income Medicare Recipients
  • PH in the News

January 15, 2010

  • PHA News Special - Tour the New Website

January 11, 2010

  • New Website is Live!
  • Ready, Set, Register!
  • Making Our Steps Toward a Cure Count Twice
  • Healthcare Reform Moving Forward
  • PH in the News

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.