July 13, 2011

PHA News, Pulmonary Hypertension Association, Empowered by hope
Blog Post from PHA's President

The Meaning of Events...

Last month, Jill Glenn called to say she was going to The First Annual Power for PH PHun Walk in Edison, N.J. Jill is president of Glenn and Glenn Productions - producers of our Kilimanjaro Climb (2nd video) and Lil Long videos - and a good friend and member of PHA. Besides walking and raising funds for PH in her own community, Jill asked if we thought it would be ok if she and her team made a pro bono video of the event. » Read more

What's In This Issue

» Spotlight On... MedicAlert Discount
» Get Smart
» Living Better With PH
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» Also of Interest
» PH News Headlines

Spotlight On...

Receive a $10 Discount on MedicAlert Emergency Response Services

The PHA community can now receive a special $10 discount off MedicAlert Advantage membership. The MedicAlert Advantage Program allows patients to create and manage emergency medical information with a personalized medical identifier and 24/7 emergency response service . » Learn more

Get Smart

Parents Support Group Webinar: Obtaining and Maintaining Insurance Coverage for Your Child

Thursday, July 21, 8:30 p.m. ET, Webinar
Hear from experts at Caring Voice Coalition and other parents about how to overcome some of the challenges of getting – and then keeping – coverage for your child. Whether your child is 5 or 25, come ready with questions and suggestions. » Register now


New Recordings Available in PHA Classroom

Missed one of our June e-learning events? Have no fear: Recordings of these events are now available in PHA Classroom. New recordings include "Lobbying Locally: Fighting PH through District Visits" and "Making the Most of Your Awareness Month Special Event." » View PHA Classroom Recordings

Living Better with PH

Stay Strong, Together

Raising a child who has PH can push your relationship with your partner into the background. But a healthy relationship can be a source of energy and renewal. Take the time to nourish the relationship you have with your "other half" with these tips. » Learn more

PH Community Scoop

Young Adults, Take Action!

The first step to making the world a better place is choosing your cause. Young adults are choosing to fight back against PH, and you can join them. A new group is forming for PH activists in their 20s and 30s. » Email to learn more

From the PHA News Desk

PHA Launches Telephone Support Group

Thursday, July 28, 8 p.m. ET

Have a hard time making it to a support group meeting? No problem. PHA is bringing the support group to YOU — straight to your home — via a telephone support group. The topic of the first meeting is "Getting to Know You." » Email to participate

Medical Community Bulletin

Investigator Training Program

The Investigator Training Program (ITP) is a FREE educational program designed by Pfizer and hosted by PHA, taking place September 24-25 in Arlington, Va, immediately following PHPN Symposium. This program supports clinical trial investigators by helping improve the skills required during the trial process. Registration is limited to the first 60 investigators, so register now! » Learn more

Live Webinar: The Role of the Respiratory Therapist in the Treatment of the PH Patient

Tuesday, August 2, 7:30 p.m. ET, Webinar
Gerilynn Connors, BS, RRT, RCP, will present this live webinar on PHA Online University. This webinar is FREE for medical professionals and is eligible for CME/CEU credits after completion of a post-test and evaluation. » Learn more

Curso de La Universidad En-Linea de PHA: Hipertension Pulmonar, Enfoque General y Clasificacion

Mediante la exposición de varios casos clínicos, este curso brinda un repaso general sobre la clasificación y el diagnóstico de la hipertensión pulmonar. El curso, presentado por el Robert Franz, MD, ofrece créditos GRATIS para el programa de Educación Médica Continua. » Informese Mas

Si gusta de más información en español para usted o sus pacientes, por favor visite
recursos en espanol

PHA Online University Course: Pulmonary Hypertension, Overview and Classification

Through the exposition of several clinical cases, this course provides a general overview of the classification and diagnosis of pulmonary hypertension. This course, presented by Robert Franz, MD, offers FREE CME credits after completion of a post-test and evaluation. » Learn more

FREE CE/CME Credits Offered at Symposium!

The 2011 PH Professional Network Symposium is offering almost 30 distinct sessions for attendees. Attendees can earn up to 11.25 hours of continuing education credit for FREE. Registration is free for the first 300 PH-treating allied health professionals, so register now! » Learn more
Also of Interest

Attention, All Original Medicare Beneficiaries!

Medicare covers preventive benefits to help people with Medicare stay healthy. If you have Original Medicare, you will now be able to get a yearly wellness visit and many other preventive services for free. » Learn more about Medicare's preventative services

PH News Headlines

» Graduate Student One Step Closer to Finding Cure for Cardiovascular Disease

» Fatal Lung Disease Could Be Treated If Diagnosed Earlier, Doctors Say

» Brevard County Pulmonary Hypertension Support Group

» Clayton Family Seeks Help for Daughter's Heart and Lung Transplant

» Journey Aims to Give Hope

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Upcoming Events

July 16, 2011
Ride PHor the Cure
Hill City, Kans.

July 21, 2011
Parents Telephone Support Group: Obtaining and Maintaining Insurance Coverage for Your Child
webinar: online and phone

Aug 13, 2011
Minnesota/Twin Cities PH Support Group 11th Annual Picnic
Maplewood, Minn.

» Go to the Events Calendar

Video Spotlight

Finding a PH Specialist

Watch as Dr. John Newman advises how to find a doctor for pulmonary hypertension.

Web of Friends

Need more information? Contact
Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.