July 27, 2011

       
PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President


The Story of a Book...

July 25 was an important day for PHA. We published the new fourth edition of our Patient's Survival Guide. Watching the work of our volunteer writers and artists, the medical reviewers (led by Dr. Ron Oudiz) and PHA staff (led by Patti Lalley and Amanda Butts), I've been awed by the work that has gone into a major revision and addition to this 300 page patient and family treasure. » Read more

What's In This Issue


» Spotlight On... Inspired Events
» Get Smart
» Website Discoveries

» From the PHA News Desk
» Medical Community Bulletin
» PH News Headlines

Spotlight On...


Celebrating Hope with Inspired Events

Special event fundraisers serve a wide variety of purposes in providing hope to the PH community. Meet Amy, one of those event planners. She infused her creativity into a first-time event, the Rolling PHor a Cure Bunco Tournament, which raised more than $3,000 for PHA and allowed her to mark an important milestone in her PH journey. » Read more

Get Smart


PHA on the Road: A Photo Journey

Check out the PHA on the Road photo gallery featuring select photos from the Pittsburgh, Penn., and St. Louis, Mo., forums. Relive the experience! You never know, you might see yourself or someone you know in one of the pictures. » Experience PHA on the Road

Website Discoveries



Things I Found by Kathryn Frix: 50 State Media Challenge

Are there red stars on your state? I'll explain. If you are like me, when you read your local newspaper and see "pulmonary hypertension," it grabs your attention. It has not happened often, but I sure notice when it does. Has that happened to you lately? Is your state represented in our 50 State Media Challenge? » Read more

From the PHA News Desk
   

Making Every Step Count the PHA Way

In the past six months, PHA offered a pediatric research webinar, spread the word about pulmonary hypertension on the airwaves and in print, and counted our 4,000th Facebook follower. » Read about what else we've been up to



What Do You Want to Know About Transplantation?

PHA is expanding our transplant resources. If you or a loved one has an interest in transplant, has been transplanted or is considering transplant, we want to hear from you! Patients, caregivers and medical professionals are all encouraged to take our brief survey.

Medical Community Bulletin


Live Webinar: The Role of the Respiratory Therapist in the Treatment of the PH Patient

Tuesday, August 2, 7:30 p.m. ET, Webinar
Gerilynn Connors, BS, RRT, RCP, will host this live webinar on PHA Online University. This webinar is FREE for medical professionals and is eligible for CME/CEU credits after completion of a post-test and evaluation. » Learn more

   

Building Medical Education in PH Event in Fla.

Saturday, August 27, Jacksonville, Fla.
"Pulmonary Hypertension Update 2011" will take place at the Mayo Clinic in Jacksonville, Fla. This course is designed to improve and update the knowledge of the healthcare provider for evaluating and managing pulmonary arterial hypertension. » Learn more
   

FREE Training for Investigators

The Investigator Training Program (ITP) is a FREE educational program designed by Pfizer and hosted by PHA, taking place September 24-25 in Arlington, Va., immediately following the PHPN Symposium. This program supports clinical trial investigators by helping improve the skills required during the trial process. Registration is limited to the first 60 investigators, so register now! » Learn more
   

Less than 100 FREE Symposium Registrations Remain!

Less than 100 FREE registrations remain for the 2011 PH Professional Network Symposium taking place September 22-24 in Arlington, Va. Attendees can earn up to 11.25 hours of continuing education credit for FREE. » Learn more and register now
PH News Headlines


» NIH Funds New Stem Cell Projects

» Diagnosis & Treatment Often Delayed in Pulmonary Hypertension Patients

» Monroe Township Boy, 10, Sees a String of Successes After Lung Disease Diagnosis

» Friends Help the Pulmonary Hypertension Association UK and BRI Special Care Baby Unit

» Over £9000 Raised

» AIDS, PH Included in Kuala Lumpur Critical Illnesses List

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Upcoming Events

Aug. 13, 2011
Minnesota/Twin Cities PH Support Group 11th Annual Picnic
Maplewood, Minn.

Aug. 30, 2011
Iron Pigs PHA Fundraiser
Allentown, Penn.

Sept. 10, 2011
5th Annual Walk and Roll
Akron, Ohio

» Go to the Events Calendar

Video Spotlight

PH Patient Colleen Brunetti

Watch PH patient Colleen Brunetti talk about living with PH during your 20s and 30s. Distribution made possible by LungRx

Members-Only Special


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Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.