September 21, 2011

       
PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President


Advances cover

Risk to Reality...

Today, I did something that astonished me. I signed a licensing agreement that will help PHA bring medical education to India in an important new way. Why this was astonishing goes back to 2000. Dr. Bruce Brundage, Craig Mears and I met to talk about the possibility of publishing a medical journal. » Read more

What's In This Issue


» Spotlight On... 50 State
Media Challenge

» Get Smart
» Living Better with PH

» PH Community Scoop
» From the PHA News Desk
» Medical Community Bulletin
» PH News Headlines

Spotlight On...


50 State Media Challenge map

50 State Media Challenge: PH News Column Leads to Diagnosis

Members of the pulmonary hypertension community have worked all year to get their PH journey in the news and their state marked with a star for PHA’s 50 State Media Challenge. Learn how simply writing a letter can result in a life-saving media story. » Read more

Get Smart


2011 Awareness Month logo

Awareness Month Ideas Webinar

Wednesday, Oct. 5, 2:00 p.m. ET
Join a panel of PHA staff for The Power of One: Getting Involved in Awareness Month 2011. Learn ways to educate your community about PH no matter how much time you have. Veteran awareness raisers, join us to share your ideas and successes. » Register now

    pen & flame

Creative Expression for Wellbeing

Wednesday, Oct. 12, 6:00 p.m. ET, Webinar
Medical research links creative endeavors to reduced symptoms and improved health. Join Janet Stone, active artist and PH patient, and Megan Mallory, PHA's Associate Director of Publications, as they discuss ideas, prompts and tips regarding creative expression for your health. This webinar includes time to share your own creative endeavors. » Register now

    child with a book

Explaining PH to Your Child: Developmentally Appropriate Approaches 

Thursday, Oct. 20, 8:30 p.m. ET, Webinar
Every child is unique. Join Michelle Calderbank and Jennifer Wisniewski, PH nurses from the Children’s Hospital Colorado, to discuss effective ways to explain PH to children of all ages and learning styles. » Register now

    a media advocate

New Media Recording Available in PHA Classroom 

Are you a young person interested in spreading Generation Hope’s message of hope and optimism while raising PH awareness? This recorded webinar will teach you about the advantages of working with the media and how to effectively share your personal PH journey with reporters! » Watch webinar

Living Better with PH


photos of four email mentors

NEW! Ask a Question, Reach a Mentor!

Support is just an email away! Our team of PH Email Mentors is standing by for patients, caregivers and parents looking for one-on-one support. Don’t want to search through mentor profiles? Contact a PH Email Mentor through our new “Ask-a-Question” page! Find a Mentor | Ask a Question

PH Community Scoop


telephone

Participate in PHA's Telephone Support Group

Wednesday, Sept. 28, 8 p.m. ET
PHA’s telephone support group reaches out to those who can't make it to local meetings, whether because of health, work hours or distance. Interested in participating? Contact Debbie@PHAssociation.org.

From the PHA News Desk


take action flame

Raise PH Awareness and Funds

PHA offers three fun and easy fundraising programs so you can help us raise awareness and funds for PH at a celebration, at work, and online. Awareness Month is the perfect time to support a cause that means so much to you. Contact Jennifer at Giving@PHAssociation.org or learn more on our website.



Anthony Ratekin

Raising Awareness in Congress ... One Constituent at a Time

After attending a PH support group meeting at the invitation of a group member, Anthony Ratekin recommended co-sponsorship of the PH Research and Education Act to his boss, Rep. Devin Nunes. Congressman Nunes agreed to back it. That’s the power of one to make a difference for the PH community. » Learn more



hand holding pencil

Chicago and L.A. Area Residents, Take Note!

PHA is looking for patients and caregivers to participate in a screening interview for a new study on living with PH. The results will help PHA create new programs for people affected by the disease. If you live within three hours of Chicago or Los Angeles, contact Caryl Kahn at c.kahn@insighthealthus.com or 646-837-8151 to learn more. 

Medical Community Bulletin


Online University logo

New Quality Indicator Set for Systemic Sclerosis

Thursday, Sept. 29, 2:00 p.m. ET, Webinar
This webinar, hosted by Daniel Furst, MD, University of California, will discuss the new set of quality indicators just released for systemic sclerosis and how these new indicators will help improve care during a patient’s diagnosis, follow-up appointments and treatment. » Register now



Online University logo

PHA Online University Webinar Recording 

If you missed the webinar “Design and Validation of an Endothelial Progenitor Cell Capture Chip and Its Application in Patients with PAH,” then you’re in luck! A recording of the webinar is now available online. Learn about this new technology from expert researchers. » View recording 

PH News Headlines


» Hormone May Help Reverse Serious Pulmonary Condition

» International Study Identifies New Gene Targets for Hypertension Treatment

» Increased Oxidative Stress and Severe Arterial Remodeling Induced by Permanent High-Flow Challenge in Experimental Pulmonary Hypertension

» Make-a-Wish Foundation Comes to North Island for Young PH Patient

» Festival Inspired by PH Patient Alfie Oliver Raises More than £2,000 for Charities

» Teenager Saves Three People through Organ Donation

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Upcoming Events

Friday, Sept. 23, 2011
New England Pulmonary Hypertension Forum
Scarborough, Maine

Saturday, Sept. 24, 2011
New England Swinging for a Cure Golf Tournament
Kennebunk Beach, Maine

Saturday, Oct. 8, 2011
8th Annual Georgia Fun Walk for PH
Marietta, Ga.


» Go to the Events Calendar

Video Spotlight

Watch Dr. Vallerie McLaughlin discuss treating pulmonary hypertension. Distribution made possible by LungRx.

Watch Dr. Vallerie McLaughlin discuss treating pulmonary hypertension. Distribution made possible by LungRx.

Are you a federal employee? Support PHA #12097.

Make a gift that keeps on giving: Become a Monthly Donor

One Event Closer to a Cure. Make an impact this Awareness Month: host a Periwinkle Party


Need more information? Contact PHANews@PHAssociation.org
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.