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PHA’s Facebook communication has come a long way. Our Facebook page was launched on October 7, 2009, and made 33 fans by the end of that day. Today we have nearly 5,500 fans around the globe. Over the years, it has provided a space for our PH community to learn, advocate and build relationships. » Read more
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» From the PHA News Desk» Medical Community Bulletin» Also of Interest» PH News Headlines
Since January, PH community members sent 273 messages to their Members of Congress requesting co-sponsorship of the Tom Lantos Pulmonary Hypertension Research and Education Act. Whether or not you will be at PHA's Conference, each message becomes part of the Advocacy Challenge: From a Kitchen Table to Congress! Find out how you can join the Challenge! » Learn more
Friday, March 23, 2 p.m. ET/11 a.m. PTIt is an exciting time for PAH research. Over the past 17 years, nine PAH therapies have been approved by the FDA. During this webinar, hear from Dr. Michael McGoon of the Mayo Clinic as he discusses the treatments that are currently available and treatments in the pipeline. » Register now
A recording of the webinar “Creativity and Healing through Blogging” is now available in PHA Classroom. In this recording, panelists discuss their experiences with blogging and other forms of creative self-expression and offer tips from the PH blogging community. » View recording
I have found a great way for you to help people in your life understand pulmonary hypertension. It was over a dozen years ago, but it is still clear in my mind how I replied when my cousin told me he finally had a diagnosis for his distressing symptoms - pulmonary hypertension. I asked, "What is pulmonary hypertension?" » Read more
February 29 was Rare Disease Day – a global effort to raise awareness of rare diseases and the need for more research and treatments. PHers joined in the effort by hosting awareness tables, spreading the word on Facebook and even speaking out on Capitol Hill. » Read more
Thursday, March 22, 8 p.m. ET/5 p.m. PTWant to chat with another patient? Can't make it to a local support group meeting? A support group is only a phone call away. Our patient telephone support group makes it easy to participate in support groups regardless of your work hours, distance or health concerns. » Learn more
Joanne, a PH patient from Long Island, N.Y., was nominated by her husband Ken and won the Dunkin’ Donuts “Show Us Your Heart” contest. » Read the great things Ken said
Planning to attend PHA’s 10th International PH Conference and Scientific Sessions? Don’t forget that the discounted Early-Bird Registration rate ends on April 2. Register before the deadline and receive a discount of $25/person off the registration fee. We hope to see you in Orlando! » Learn more and register
Acknowledge those who have helped you through your PH journey or remember those who have passed with a Note of Thanks and Remembrance printed in the program book for PHA’s 10th International PH Conference and Science Sessions. You don’t have to go to Conference to be able to tell the 1,300 expected attendees who is important to you. Each note is $25 and all proceeds support the Conference Scholarship Fund. » Submit your note today
Saturday, April 14, Philadelphia, Pa.The Perelman School of Medicine at the University of Pennsylvania will be hosting the annual Alfred P. Fishman Symposium on April 14. This year’s symposium, “Pulmonary Vascular Phenotypes in Research and Clinical Care,” aims to present novel methods of phenotyping patients with pulmonary vascular disease, including genetic, metabolomic and network approaches. » Learn more
Recently, PHers joined American Association of Respiratory Care (AARC) members to double our impact on Capitol Hill. We educated elected officials about the need for increased access to respiratory therapists and requested co-sponsorship of the Tom Lantos PH Research and Education Act. Learn more about AARC | Take action on the PH bill
Disability.gov recently launched a newly designed website, making it easier for people with disabilities and their families to find disability services in their communities. The website connects Americans to more than 14,000 resources, including government agencies, academic institutions and nonprofit organizations. » View the site
» Florida Suspends Doctor Accused of Illegal Stem Cell Therapy
» Differences of Cardiac Output Measurements by Open-circuit Acetylene Uptake in Pulmonary Arterial Hypertension and Chronic Thromboembolic Pulmonary Hypertension: A Cohort Study
» Whittier Woman Receives Miracle and Gives Back
» Annual Shamrock Run Paints Portland Green, Brings Joy to PH Patients and Participants
» Las Vegas Woman Stays Positive While Battling Rare Diseases
» Raynaud's Disease Sufferers Learn to Adapt, Avoid the Cold
» More News
March 24, 2012The 2012 Woodlands Crawfish FestivalThe Woodlands, Texas
March 24, 2012Spur a Cure for PHPhoenix, Ariz.
» Go to the Events Calendar
Need more information? Contact PHANews@PHAssociation.orgPulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910Office: 301-565-3004 | Fax: 301-565-3994
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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.