Patient-to-Patient Support Line Volunteer Profile

Stu BerwickStu Berwick

Diagnosed: 2001
Patient-to Patient Support Line Volunteer since: 2011

What does being a Support Line Volunteer mean to you?

I truly feel good talking someone down from the cliff of being diagnosed. I love being stretched to give more after each call, and each call is a new challenge.

Did you ever have a memorable experience on the Support Line?

One of my most memorable calls was speaking to a man who had just lost his wife to PH. This man had no idea what to do. He was absolutely devastated and was at a complete loss. He also wanted to get involved with PHA. We talked for several hours. I was able to help this man through one of the hardest things he may face in his life.

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.