PHA News
In This Issue
Dr. Nicholas Hill Awarded for Excellence in PAH Care
Statement on Stem Cells from SLC
Conference Theme Contest
Registration Closed forPHA on the Road!
Former Caregiver Now Inspirational Event Planner
Winter 08-09 Journal
PH in the News
Conference Plenary Sessions on DVD
Join Our E-News Lists
Join our other e-news lists
  • Advocacy Action Alerts
  • Advances in PH medical journal
  • Legacy E-Newsletter
  • Mid-Atlantic PHA Volunteers (MD, VA, DC)

Not already a PHANews subscriber? Subscribe today!

Join Our E-News Lists

Quick Links
Donate Now
 
Sustainers Circle - Monthly Gift
Upcoming Events
 
2nd Annual Driving "Fore" A Cure
June 8, 2009
Danville, Calif.
 
California PH Forum 2009
June 19-21, 2009
San Farncisco, Calif.
 
2009 JFK Tower Golf Tournament
June 29, 2009
New Jersey
 
2nd Annual Swing 4 The Cure - Wojo PH Golf Classic
Dana Point, Calif.
July 20, 2009
Vol 10/Number 11 May 29, 2009
PHA logoPHANews Editor - Sally Maddox
skshmaddox@yahoo.com
Contributing Editors - PHA staff
 
reaching over 6500 subscribers
www.PHAssociation.org
PHA NAMES DR. NICHOLAS HILL RECIPIENT OF 2009 AWARD OF EXCELLENCE IN PAH CARE

Dr. Nick Hill of Tufts Medical Center is the Recipient of PHA's 2009 Award of Excellence in Pulmonary Arterial Hypertension (PAH) Care.
 
He joins previous distinguished winners: Walker Long, M.D. (1994); Lewis Rubin, M.D. (1996); Stuart Rich, M.D. (1998); Bruce Brundage, M.D. (2000); David Badesch, M.D. (2002); Michael McGoon, M.D. (2004); Greg Elliot, M.D. (2006); John Newman, M.D. and James Loyd, M.D. (2007); and Robyn Barst, M.D. (2008).
 
The award, supported by Actelion, includes a $50,000 prize for ongoing commitment to excellence in clinical care and improved outcomes for patients living with PAH.
 
STATEMENT ON STEM CELLS FROM PHA SCIENTIFIC LEADERSHIP COUNCIL

The Education Committee of PHA's Scientific Leadership Council (SLC) is currently creating a fact sheet on stem cell use in PAH, which will be posted on the PHA website, along with other fact sheets on therapeutics, that will provide patients and providers with objective information on these issues.
 
Stem cell use has not been adequately studied and neither the efficacy nor safety of stem cells to treat PAH has been established. At this time, the SLC recommends stem cell therapy only as part of a registered, controlled clinical trial in carefully selected patients. We recommend that patients discuss stem cell therapy (and any new therapies) with their PH specialist.
 
Pulmonary Hypertension Association
ENTER THE PHA CONFERENCE THEME CONTEST -- INSPIRE OUR COMMUNITY
PHA's 9th International PH Conference and Scientific Sessions will be taking place in Garden Grove, Calif., on Friday, June 25 - Sunday, June 27, 2010. Planning is well underway for this unique event that draws together patients, caregivers and medical professionals in the largest PH meeting in the world.
 
However, PHA needs your help in determining a theme for the Conference that conveys our progress as a community in the fight against PH. Visit the 2010 Conference webpage for more details about the Conference Theme Contest, as well as a listing of past themes. The winner of the Theme Contest will receive one FREE Conference registration!
REGISTRATION CLOSED FOR PHA ON THE ROAD
PHA on the Road: PH Patients and Families Education Forum, A Program of the PHA Medical Education Fund
Due to the growing excitement about the PHA on the Road Forums and the unprecedented number of registrants, we have reached maximum capacity for each of the programs. Registration is now closed for all Forums to ensure the safety and comfort of those attending, and onsite registration will not be available at the PHA on the Road Forums.
 
If you are interested in attending PHA on the Road, please visit our website and fill out the waiting list form. You will then be contacted if space becomes available as the events draw near. Please also be sure to check back after the event date as all presentation materials will be made available online.
 
If you are already signed up to attend PHA on the Road, but are no longer able to make the event, please notify us by contacting ontheroad@PHAssociation.org so that your spot may be given to someone on the waiting list.
FORMER CAREGIVER IS NOW INSPIRATIONAL VOLUNTEER EVENT PLANNER

The 1st Annual Scramble for a Cure (Cure PH) Golf Tournament was held Saturday, April 18, 2009, on the Palm Course at Angel Park Golf Club in Las Vegas, Nevada.  This golf event was held in memory of Heather Massey, who passed away a few years ago from pulmonary hypertension at the young age of 28.
 
Heather's boyfriend of 3 ½ years and Golf Tournament coordinator, Jack Nino, thought holding this tournament would be a great way to honor her memory and to help raise awareness of the disease. Along with golfing, this event offered a luncheon, ball drop, silent auction, raffle and music.
 
READ WINTER 08-09 ADVANCES IN PH JOURNAL ONLINE
The Winter 08-09 issue of Advances in Pulmonary Hypertension is now available online! This issue, titled "New Applications of Diagnostic Modalities," explores the role of echocardiography in the diagnosis and assessment of PH as well as the role of cardiac MRI in PH, and cardiopulmonary hemodynamics in PH pressure.
 
This issue also contains a CME section, and a round table discussion on identifying the key issues in exercise testing. 
 
PH IN THE NEWS
FDA Approves Adcirca (Tadalafil) Tablets for Pulmonary Arterial Hypertension
(News-Medical.Net) - United Therapeutics Corporation announced that the United States Food and Drug Administration (FDA) has approved Adcirca (tadalafil) tablets for oral administration, with a recommended dose of 40 mg, as the first once-daily phosphodiesterase type 5 (PDE5) inhibitor for the treatment of pulmonary arterial hypertension (PAH). Read article
 
Bayer Schering Presents Positive Results of Phase II Study With Riociguat
(Pharmacy Europe) - Positive data from a phase II trial with Bayer Schering Pharma's oral agent riociguat (BAY 63-2521) in chronic thromboembolic pulmonary hypertension (CTEPH) and pulmonary arterial hypertension (PAH) were presented at the American Thoracic Society (ATS) international conference in San Diego, Calif. Read article
 
Bosentan in Combination With Tadalafil
(PharmaLive) - Patients with pulmonary arterial hypertension (PAH) who receive an additional 20 or 40mg tadalafil to their first-line bosentan therapy demonstrated a trend towards a positive 23m improvement during the six-minute walk distance (6MWD) test, a measure of symptom severity and functioning, according to the PHIRST study data presented at the 2009 American Thoracic Society (ATS) conference. Read article 
 

Read more Headline News ...
PLENARY SESSIONS FROM 2008 CONFERENCE NOW AVAILABLE ON DVD
Each PHA International Conference gives the PH community an opportunity to take stock of how far we have come and to celebrate future possibilities.
 
This two-disc set features plenary sessions from PHA's 8th International Conference in Houston, Texas, including: Conference Opening by Carl Hicks, Jr., Chair, PHA Board of Trustees; "Journeys Luncheon;" and the "Next Generation of PHA Leaders" panel.
 
We will be distributing these for free through Support Groups and other avenues. Can't wait? Purchase your copy from the PHA Store today!

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
Webmaster@PHAssociation.org
    Privacy Policy   Virtual Tour of Website    Provide Feedback & Report Bugs

Designed by Matrix Group International, Inc.® | © 2014 Pulmonary Hypertension Association. All Rights Reserved.

NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.