OUR JOURNEYS

Patient story

Patricia Lawson

I was diagnosed with systemic lupus in 1988 and have developed many other diseases and complications subsequently. Several years ago I was diagnosed with PAH. To my knowledge there is no support or advocacy group in my city. I need to talk to others who have PAH; I need to understand how to live with this disease. I have the appropriate doctors—a rheumatologist and a lung specialist—but there is no PAH specialist here. I am currently on Tracleer with no improvement after six months. Can you connect me with others who have PAH? Thanks.

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.