PHANews Archives

The following archives are provided for historical purposes only. Given the changing nature of the web, some links may have expired, but each past issue will still give you a sense of what was going on in the PH community at any given time.

20152014 | 2013 | 20122011 | 2010 | 2009 


Oct. 15, 2014 - PHCC Improves Patient Care

  • Blog from PHA's President: PH Care Centers (PHCC) and the Patient Registry
  • Awareness Month: Order Your PH Gear & Organize a Party for Color the World Periwinkle Day
  • Tell the Media About PH: Three Fast and Easy Ways to Get Your Story in the Media
  • Help Keep PHA Strong: Support the Fight Against PH
  • PH News Headlines
  • Video Spotlight: Chloe Temtchine has added her voice to the Still PHighting Campaign by making her video selfie to Congress.

Sept. 3, 2014 - Find Tips for Healthy Living

  • Blog from PHA's President: Using Film to Change the World...
  • From the PH Community: PH Plus Blog: More Herbs, Less Salt Day
  • Living Better with PH: Resources for Coping with PH
  • Be Empowered by Membership: Strength in Numbers!
  • PH News Headlines
  • Video Spotlight: PHA's 2014 Conference Highlights Video

August 20, 2014 - Tell Your Family and Friends: We're on the Road

  • Blog from PHA's President: Out on the Road: PH Education Coming Straight to You
  • From the PH Community: Generation Hope Blog: I Am Not My Disease!
  • Spreading the Word About PH: PHA's PSAs Educate the Community about PH
  • Attend This Upcoming Webinar: Exercising Mindfully with PH
  • PH News Headlines

August 6, 2014 - Be Part of Pathlight's Future

  • Blog from PHA's President: Pathlight: A Look Back at Our History and Toward Our Future
  • From the PH Community: Generation Hope Blog: Dealing with Changes in Your Health
  • Join Us Out on the Road: PHA on the Road: Don't Forget to Register!
  • PH News Headlines
  • Video Spotlight: Young PHer Eliana and her mother created a video to raise PH awareness

July 23, 2014 - Summertime Survival for PHers

  • Blog from PHA's President: 16 Years ...
  • From the PH Community: PH Plus Blog: Summertime Survival
  • Preparing for School with PH: Help Your Child Succeed This School Year
  • Help Influence the Pathlight Look: Take the Pathlight 2014 Survey Now
  • PH News Headlines

July 9, 2014 - PHighting Back for Our PHamily

  • Blog from PHA's President: This week, I invited Carl Hicks, PHA’s Executive VP to write ...
  • From the PH Community: PH Plus Blog: My First PHA Conference
  • Join Us on the Road: PHA is back "On the Road"
  • Hot Off the Press: Latest Survival Guide
  • Join ATS and PHA Webinar: Genetics of Pulmonary Hypertension
  • PH News Headlines

June 25, 2014 - Conference and Team PHenomenal Hope Succeed

  • Blog from PHA's President: We Had a Meeting and it was Good...
  • Make Plans to Advocate: Bring Advocacy Home This August
  • Race of Our Lives: Congratulations, Team PHenomenal Hope
  • Let Your Voice Be Heard: What's the Ideal PH Treatment?
  • PH News Headlines

June 11, 2014 - Cheer Team PH on This Saturday

  • Blog from PHA's President: The International Reach of the PH Cause
  • Team PHenomenal Hope: Cheer Team PH on This Saturday
  • Follow PHA at Conference: Join the Conference Conversation
  • For Medical Professionals: New Releases of Free CMEs/CEUs on PHA Online University
  • PH News Headlines

May 28, 2014 - PH Patients Speak with FDA

  • Blog from PHA's President: Around the World in 30 Days ... and Still Going!
  • Patients Speak with FDA: PHers Share Powerful Stories with FDA
  • Last Chance to Register for Conference: Conference Registration Closes June 6
  • Patient Education Resources: Traveling with PH e-Learning Guide
  • For Medical Professionals: Applications Now Accepted for Gilead Sciences Research Scholars Program in PAH
  • PH News Headlines

May 14, 2014 - World PH Day - Pieces of a Brilliant Mosaic

  • Blog from PHA's President: World PH Day: Pieces of a Brilliant Mosaic
  • Webinar with Pediatric Researchers: Meet the Barst Pediatric Research Fund Awardees
  • Tips for Living with PH: Understanding How to Maximize Your Independence for Everyday Living
  • Send a Note of Thanks: Honor Those Who've Made a Difference in Your Life
  • PHA Ranks on Charity Navigator: PHA Receives Top Rating from Charity Navigator
  • PH News Headlines

April 16, 2014 - Celebrate Pathlight's Birthday

  • Blog from PHA's President: Join Us for a Rare Opportunity... A Conversation with FDA
  • Pathlight Goes Electronic:Celebrate Pathlight's Birthday Online
  • Conference Deadline Approaching: Early-Bird Registration Closes Soon
  • Provide Important Input for Research: PROMIS – Quality of Life Survey
  • Webinar for Patients & Families: PH Treatments: What's on the Horizon
  • PH News Headlines

April 2, 2014 - Talk to FDA, Meet Pediatric PH Researchers, and More

  • Blog from PHA's President: Leadership, Face to Face...
  • FDA Wants to Hear From You: What PH Symptoms Most Impact You?
  • Sponsor a Mile for Team PHenomenal Hope: Enter the Race of Our Lives UP Wristband Contest
  • Webinar for Patients & Families: The PHCC Initiative: The Next Chapter of PH Management
  • Pediatric Research Grants in Action: Meet the Barst Pediatric Research Fund Awardees
  • PH News Headlines

March 19, 2014 - Be Brave on March 29

  • Blog from PHA's President: Be Brave... and Take a Simple Action
  • Make Your Idea a Reality: PHA Wants to Fund Your Great Idea
  • Advocacy in Action: PHA's National Call-In Day is April 2
  • Join Us for The PHenomenal Mile: Walk with Us on April 12
  • Educational Webinar for Patients: History of PH: Progress in Clinical Management
  • Join Team O2 breathe: Midwest Chapter an Affiliate Charity for Bank of America Chicago Marathon
  • PH News Headlines

March 5, 2014 - FDA Wants to Hear from You

  • Blog from PHA's President: Is Hap Farber Really Skiing Down Four Mount Everests for PHA?
  • Let Your Voice be Heard: What Do You Want from New PAH Drugs?
  • Get Updates on Our 2014 Conference: Conference Updates – Anywhere, Anytime!
  • Patient Education Resources: New e-Learning Guide: Relationships with PH
  • Medical Professional Education: Upcoming PHA Online University Webinar
  • PH News Headlines

Feb. 19, 2014 - Unite... From Rare to Everywhere

  • Blog from PHA's President: Igniting the Flame...
  • Join us for the PHenomenal Mile: One Day – One Community – One Mile
  • From Rare to Everywhere: Rare Disease Day is Feb. 28
  • Pediatric PH Educational Opportunity: Special Family Session at Neonatal & Childhood Pulmonary Vascular Disease Conference
  • Submit a Note of Thanks and Remembrance: Honor Those Who've Made a Difference in Your Life
  • PH News Headlines

Feb. 5, 2014 - Bringing Ideas in the PH Community to Reality

  • Blog from PHA's President: Bringing Ideas to Reality... For the Good of Us All
  • Give the Gift of Life: Organ Donor Day is Feb. 14
  • Nominate Someone Outstanding: Nominations Open for PHA Outstanding Member Awards
  • Living Better with PH: Empower Yourself This Year
  • Webinar for Parents: Pediatric Webinar: Transplant
  • PH News Headlines

Jan. 22, 2014 - Register for Conference and more!

  • Blog from PHA's President: Brushing Aside the Shadows...
  • Resources for Kids: New PH website Just for Kids
  • Advocacy Opportunities: Do You Live in One of These States?
  • Join Us at Our 2014 Conference: Online Registration Now Open!
  • International Spotlight: PH Awareness Month in Asia
  • PH News Headlines

Jan. 8, 2014 - Moving into 2014 - New PH Drug Approved

  • Blog from PHA's President: Moving into 2014...
  • New Pulmonary Hypertension Drug Approved: New PH Drug Marks Twelfth Option for Disease
  • From the PH Community: Generation Hope Blog: The Unpredictable Road Ahead
  • Online Education for Patients & Families: View PHA Classroom Webinar Recordings
  • PH News Headlines



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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.