PHANews Archives

The following archives are provided for historical purposes only. Given the changing nature of the web, some links may have expired, but each past issue will still give you a sense of what was going on in the PH community at any given time.

2014 | 2013 | 20122011 | 2010 | 2009 

2014

April 2, 2014 - Talk to FDA, Meet Pediatric PH Researchers, and More

  • Blog from PHA's President: Leadership, Face to Face...
  • FDA Wants to Hear From You: What PH Symptoms Most Impact You?
  • Sponsor a Mile for Team PHenomenal Hope: Enter the Race of Our Lives UP Wristband Contest
  • Webinar for Patients & Families: The PHCC Initiative: The Next Chapter of PH Management
  • Pediatric Research Grants in Action: Meet the Barst Pediatric Research Fund Awardees
  • PH News Headlines

March 19, 2014 - Be Brave on March 29

  • Blog from PHA's President: Be Brave... and Take a Simple Action
  • Make Your Idea a Reality: PHA Wants to Fund Your Great Idea
  • Advocacy in Action: PHA's National Call-In Day is April 2
  • Join Us for The PHenomenal Mile: Walk with Us on April 12
  • Educational Webinar for Patients: History of PH: Progress in Clinical Management
  • Join Team O2 breathe: Midwest Chapter an Affiliate Charity for Bank of America Chicago Marathon
  • PH News Headlines

March 5, 2014 - FDA Wants to Hear from You

  • Blog from PHA's President: Is Hap Farber Really Skiing Down Four Mount Everests for PHA?
  • Let Your Voice be Heard: What Do You Want from New PAH Drugs?
  • Get Updates on Our 2014 Conference: Conference Updates – Anywhere, Anytime!
  • Patient Education Resources: New e-Learning Guide: Relationships with PH
  • Medical Professional Education: Upcoming PHA Online University Webinar
  • PH News Headlines

Feb. 19, 2014 - Unite... From Rare to Everywhere

  • Blog from PHA's President: Igniting the Flame...
  • Join us for the PHenomenal Mile: One Day – One Community – One Mile
  • From Rare to Everywhere: Rare Disease Day is Feb. 28
  • Pediatric PH Educational Opportunity: Special Family Session at Neonatal & Childhood Pulmonary Vascular Disease Conference
  • Submit a Note of Thanks and Remembrance: Honor Those Who've Made a Difference in Your Life
  • PH News Headlines

Feb. 5, 2014 - Bringing Ideas in the PH Community to Reality

  • Blog from PHA's President: Bringing Ideas to Reality... For the Good of Us All
  • Give the Gift of Life: Organ Donor Day is Feb. 14
  • Nominate Someone Outstanding: Nominations Open for PHA Outstanding Member Awards
  • Living Better with PH: Empower Yourself This Year
  • Webinar for Parents: Pediatric Webinar: Transplant
  • PH News Headlines

Jan. 22, 2014 - Register for Conference and more!

  • Blog from PHA's President: Brushing Aside the Shadows...
  • Resources for Kids: New PH website Just for Kids
  • Advocacy Opportunities: Do You Live in One of These States?
  • Join Us at Our 2014 Conference: Online Registration Now Open!
  • International Spotlight: PH Awareness Month in Asia
  • PH News Headlines

Jan. 8, 2014 - Moving into 2014 - New PH Drug Approved

  • Blog from PHA's President: Moving into 2014...
  • New Pulmonary Hypertension Drug Approved: New PH Drug Marks Twelfth Option for Disease
  • From the PH Community: Generation Hope Blog: The Unpredictable Road Ahead
  • Online Education for Patients & Families: View PHA Classroom Webinar Recordings
  • PH News Headlines

 

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.