March 19, 2014

PHA News, Pulmonary Hypertension Association, Empowered by hope
Blog Post from PHA's President
    Chloe Temtchine performing at NY O2 breathe Gala

Be Brave... and Take a Simple Action

The first time I heard Chloe Temtchine sing was on Nov. 12, 2013. It was at the inaugural O2 breathe Gala, hosted by PHA’s Greater New York and Philadelphia Chapter. The performance was quite impressive. Chloe’s talents are great and so is her spirit, and now she is asking all of us to take a simple action to further the PH cause. I’d like to tell you how you can help. » Read more

Make Your Idea a Reality
    Lantos Poster

PHA Wants to Fund Your Great Idea

Through the Tom Lantos Innovation in Community Service Awards program, you could receive up to $5,000 to fund your great idea. PHA is looking to support projects that increase awareness of PH, develop services for the PH community, or expand the reach of an existing PH program. The application deadline is April 15, and PHA can help you apply. » Learn more

Advocacy in Action
    U.S. Capitol

PHA's National Call-In Day is April 2

The Pulmonary Hypertension Research and Diagnosis Act will advance PH research and improve early and accurate PH diagnosis. A simple phone call to your Members of Congress on April 2 can take us a long way toward longer, better lives for those with PH. » Learn more

Join Us for The PHenomenal Mile
    Race of Our Lives - PHenomenal Mile

Walk with Us on April 12

The PHenomenal Mile is only a few weeks away, and there is still time to get involved! To date, 30 states, plus Puerto Rico, and 68 groups have committed to walking with us! Help us get all 50 states on the map and show your support for Team PHenomenal Hope and the Race of Our Lives campaign. » Learn more

Educational Webinar for Patients
    PHA Classroom

History of PH: Progress in Clinical Management

March 25 at 2 p.m. ET/ 11 a.m. PT
Join us for this unique opportunity to hear from a panel of experts considered to be among the founders of the modern PH field. This interactive discussion is the second in the History of PH webinar series and will focus on the progress in clinical management of PH. Register now | View recording of first webinar in the series

Join Team O2 breathe
    Team O2 breathe - Bank of America Chicago Marathon

Midwest Chapter an Affiliate Charity for Bank of America Chicago Marathon

PHA’s Midwest Chapter is excited to be an Affiliate Charity for the 2014 Bank of America Chicago Marathon Charity Program. We have a select number of marathon bibs available to participants between now and April 6. Do you know someone who would like to run? Reserve a guaranteed spot on Team O2 breathe now! » Learn more

PH News Headlines



Research & Treatment News
» ATS Releases Guidelines of the Management of Pulmonary Hypertension of Sickle Cell Disease

» Breathing Easier Through Pulmonary Rehab

» Ambrisentan of Benefit Regardless of PAH Severity

» Japanese PAH Patient Prognosis "Good"

Updates From PHers Around the World

» Generation Hope Blog: PH Goes to College - Part 2

» Rare but Serious Lung Disease Leads Falmouth, Mass., Woman to Start Support Group

» More News

with PHA


Telephone Support

March 27, 2014
8 p.m. ET/5 p.m. PT

April 16, 2014
1:30 p.m. ET/10:30 a.m. PT

April 21, 2014
8 p.m. ET/5 p.m. PT

April 21, 2014
11 p.m. ET/8 p.m. PT

Upcoming Events

March 28, 2014
St. Louis Trivia Night
Maryland Heights, Mo.

April 12, 2014
The PHenomenal Mile

April 12, 2014
Walk to Cure PH - The Ellie Godina Memorial Walk
Euclid, Ohio

April 13, 2014
PHenomenal Hope 5K
Pittsburgh, Pa.

» Go to the Events Calendar

Video Spotlight

Chloe Temtchine Video

"This is not your ordinary day. But, what I have learned changed my life," says Chloe Temtchine. Chloe is a singer/songwriter with PH, and her new song "Be Brave" will be available on iTunes on March 29. » Watch this video

Need more information? Contact
Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
Office: 301-565-3004 | Fax: 301-565-3994

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.