This interview was conducted in spring 2010 by Mira Kruger, the granddaughter of a PH patient and a volunteer writer for PHA’s Pathlight newsletter.
Where do you live?
I live in Sandy, Utah
How old are you?
I am 11 years old.
When were you diagnosed?
I was diagnosed July 1, 2003.
When did you first start having symptoms of PH?
I first started having symptoms when I was 2 or 3.
What were your symptoms?
Around age 2 or 3, I started fainting, so my parents took me to the doctor to get me check out.
Do you do summer activities (like go to camp)?
I don’t go to camp, but my parents like to take my family on vacation.
Have you ever felt unable to do something because of PH?
Yes, I do miss out on some things, like playing summer sports.
What has changed in your life since you were diagnosed with PH?
I feel like I’m not a “normal” kid sometimes. I miss a lot of school, and I can’t run as far as the other kids in my grade.
What is a message you’d like to pass on to other kids with PH?
I want them to remember to keep their heads up high and not to give up hope.