The Pulmonary Hypertension Association (PHA) is pleased to announce the publication of its 2020 Annual Report. The report reflects PHA’s achievements during a challenging year, flanked by the emergence of the COVID-19 virus and emergency FDA vaccine approval as we entered 2021, as discussed by CEO Matt Granato and Chair Colleen Brunetti in their Letter from Leadership.
Despite the challenges, the report acknowledges PHA’s proudly patient-focused, patient-driven history – and its impact and momentum into the future.
The PHA Annual Report celebrates the association’s strides to fulfill its mission to extend and improve the lives of those affected by pulmonary hypertension (PH). The report shows PHA’s impact through research, education, support and advocacy through stories of people with PH, caregivers and health care providers.
The Annual Report features profiles of:
Susan Huber, who tested positive for COVID-19 in July 2020 after noticing she was coughing more than she normally would from her PH.
Aaron Waxman, director of Brigham and Women’s Pulmonary Vascular Disease Program, a PHA-accredited PH hypertension care center. Dr. Waxman led an COVID-19 ICU team in the pandemic’s early months.
Diane Ramirez, a PHA board member, support group leader and political advocate who’s lived with PH for 33 years.
Caregiver Ann Benner, who with her brother Robert Tropiano, found peace, serenity and camaraderie during the pandemic through virtual support group meetings.
Nurse practitioner and support group leader Melisa Wilson, D.N.P., APRN-BC, who worked with PHA during the pandemic to transition to virtual meetings and educate members about COVID-19.
Ke Yuan, Ph.D., who started her own lab in 2020 at Boston Children’s Hospital, Harvard Medical School, thanks to a PHA research grant.
Gale Perkins, who didn’t let the pandemic stop her from enjoying life with her four children and participating in a virtual fundraising walk for PHA.
The Annual Report features a tribute to Pat Paton, one of PHA’s co-founders. The report also demonstrates PHA’s achievements in key strategic areas: empowering patients and caregivers, promoting quality patient care, catalyzing research for a cure, advocating for the PH community and ensuring financial resources to meet our mission.