PULMONARY HYPERTENSION ASSOCIATION NEWS
PHA at ATS: Advancing Innovation, Collaboration, Patient-Focused Care
Matt Granato recently represented the Pulmonary Hypertension Association at the American Thoracic Society International Conference. Granato described the conference as a powerful reminder of the momentum PHA is building in PH research, education and patient advocacy.
Fetal Toxicity Remains Risk for Some PH Therapies
The Food and Drug Administration recently eliminated the fetal toxicity risk-mitigation requirement for three pulmonary hypertension medications. FDA removed the Risk Evaluation and Mitigation Strategies requirement for ambrisentan, macitentan and the macitentan-tadalafil combination tablet, but not bosentan.
PHA Names Pediatric Grant Recipients
Ripla Arora of Michigan State University and Katelyn Enzer of University of Colorado are the latest recipients of PHA’s Pediatric PH Research Grant. Arora explores how embryos interact with the uterus during early development and how lungs develop in utero. Enzer’s researches innovative techniques to assess pulmonary function in preterm infants.
Patient Stories Show PH Impact Around the World
The Pulmonary Hypertension Association joined the global pulmonary hypertension May 5 by sharing patient stories for World PH Day. The theme, “Sometimes It’s Pulmonary Hypertension,” highlighted patients’ anxiety, uncertainty and health consequences before finally learning they have PH.
PHA Accredits 100th PH Care Center
Children’s Mercy Hospital in Kansas City, Missouri, became the 100th PHA-accredited Pulmonary Hypertension Care Center in April. Children’s Mercy is one of 3 pediatric Regional Clinical Programs in PHA’s care center network. “We trust accreditation will give patients and families confidence in the care we provide,” said Kate Carp, PH clinical nurse coordinator at Children’s Mercy.
Hill Day Visits Pay Off With Immediate ‘Win’
After PHA advocates visited members of Congress for World PH Day, Rep. Cleo Fields (D-La.) stepped up right away. Fields signed on as cosponsor of Supplemental Oxygen Access Reform Act the day after our in-person advocacy event on Capital Hill.
40-Year Thriver Finds Joy While Navigating Chronic Conditions
Kim Everett has lived with lupus for over 40 years and pulmonary arterial hypertension for over 20. For Lupus Awareness Month, she shares her diagnosis journey and advice for navigating life with chronic illnesses.
PHA at the American Thoracic Society International Conference
Matt Granato recently represented the Pulmonary Hypertension Association at the American Thoracic Society International Conference. He described the conference as a powerful reminder of the momentum PHA is building in PH research, education and patient advocacy.
Fetal Toxicity Remains Risk for Some PH Therapies
The FDA removed the Risk Evaluation and Mitigation Strategies requirement for ambrisentan, macitentan and the macitentan-tadalafil combination tablet, but not bosentan.
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