PULMONARY HYPERTENSION ASSOCIATION NEWS
Support Group Leader Finds Silver Linings
Rachel Gabbert Roberts was 30 when she was diagnosed with idiopathic pulmonary arterial hypertension in 2010. Since then, she has learned to listen to her body and have a positive outlook on life.
Help Improve the Lives of People With PH
Want to do your part to support the PH community? Anyone can be an advocate in as few as five minutes. PHA makes it quick and easy to connect with your members of Congress.
New Courses Available in PHA Online University
PH professionals: Take the next step in your career. Explore job opportunities through the PHA Career Center. Create your job seeker account and upload your CV or resume to catch the eye of employers looking for talent like yours.
Join Us in Celebrating World PH Day
Please join PHA in observing World Pulmonary Hypertension Day on May 5. World PH Day is a global effort to raise PH awareness. Led by PHA Europe, this year’s campaign “Sometimes it’s Pulmonary Hypertension,” draws attention to the challenges of getting an accurate diagnosis. The campaign brings together people from around the world to shed light on the frustrating, frightening journey patients experience before hearing “It’s PH.”
Volunteer Takes on International Care Disparities
As the moderator of a PHA Facebook group, Janessa Curnow, 38, receives requests to join the group from people all over the world. For World Pulmonary Hypertension Day on May 5, Curnow shares what she’s learned from the international PH community. Curnow leads the PHA Young Adult Support Group and previously led the PHA Grand Rapids Support Group in Michigan.
Piper With PH Marches Onward
Carole Doody's passion, playing the bagpipes, saved her life. When she no longer could play the right tones or march, Doody knew something was wrong. Fifteen years after her PH diagnosis, the retired speech-language pathologist volunteers for PHA. She shares her story in honor of National Volunteer Week, which wraps up April 26.
Workshop Speakers, Support Groups Inspire Attendees
More than 80 people attended PHA’s PH Community Workshop March 22 in Charlotte, North Carolina. Diane Ramirez, who had PH for 36 years before a heart-lung transplant, shared her story in the keynote address. “Meeting and hearing from Diane was inspiring,” says Barbara Stubbs, leader of the PHA Upstate South Carolina Support Group. “Her enthusiasm for life was contagious.”
Help Improve the Lives of People With PH
Want to do your part to support the PH community? Anyone can be an advocate in as few as five minutes. PHA makes it quick and easy to connect with your members of Congress.
Support Group Leader Finds Silver Linings
Rachel Gabbert Roberts was 30 when she was diagnosed with idiopathic pulmonary arterial hypertension in 2010. Since then, she has learned to listen to her body and have a positive outlook on life.
Patient-to-Patient Support Line: 1-800-748-7274
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