PHA’s Advocacy Action Center provides the tools you need to educate your elected officials about pulmonary hypertension. Check back throughout the year to make your voice heard on legislation and regulation that impacts the PH community.

Tell Congress to Pass Supplemental Oxygen Reform

For too long, people who require supplemental oxygen have not had access to the oxygen appropriate for their medical and quality of life needs, especially individuals who require liquid oxygen. For many PH patients, access to portable, accessible, and clinically appropriate treatment has not been available, or has even been revoked by suppliers.

The Pulmonary Hypertension Association urges Congress to pass legislation to ensure anyone who requires supplemental oxygen can access the most appropriate type of oxygen for their needs.

Take action today and urge Congress to pass legislation addressing the challenges associated with supplemental oxygen.

Because when you can’t breathe, nothing else matters.

Make a World of Difference with Congress in May

Mark your calendar for virtual advocacy visits with PHA this May. Starting with World PH Day on May 5, you’ll have the opportunity to meet virtually with you members of Congress throughout the month. Schedule now for a time convenient for you.

With a new legislative session starting this year, advocates like you have the opportunity to educate new lawmakers and ensure that pulmonary hypertension (PH) stays top of mind for all members of Congress. You don’t need any advocacy experience to participate; sharing your PH story is every advocates first and most effective advocacy tool.

Attending a legislative visit can be as simple as logging into a Zoom meeting from the comfort of your own home. PHA’s advocacy staff and volunteers will provide pre-meeting coaching on talking points and they can also join you in the meeting as a facilitator.

Fill out the form below or call (301) 565-3004 ext.758 to schedule your virtual meeting in time for May.

Protect Access to Charitable Assistance

The Help Ensure Lower Patient Copays Act (HELP Copays Act, H.R. 830) protects access to charitable assistance by closing a loophole that insurance companies are using to take more than their fair share of patient copays.

The PH community often relies on charitable assistance to afford copays for expensive PH medications and therapies. Some insurance companies increase their profits by accepting copayments from these third-party sources, without counting those payments towards the patient’s deductible. The means the patient is responsible for the full amount of their deductible once their financial assistance has run out for the year.

Tell your member of Congress to cosponsor the HELP Copays Act and protect our community from this unfair insurance practice.

Welcome your elected officials to the 118th Congress.

Whether your elected officials are returning to office, or are among the more than 80 newly elected members, it’s important to share your story and keep the PH community on their radar. Creating a relationship with your members of Congress over time is the best way to turn them into a PH champion.

Stay involved

When you join PHA’s grassroots advocacy network, we send you the resources you need a few times a year to stay in touch with your members of Congress about issues that affect your life. Be heard. Be a PH advocate.

Schedule a meeting with your members of Congress

Your members of Congress work for you. Move PH to the top of their legislative agendas through planned phone calls, video meetings and visits to their offices in your state. Schedule your visit by completing our form or contact us at 301-565-3004 x749.

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