CTEPH Awareness Toolkit 2018-11-09T21:02:46+00:00

CTEPH Awareness Day

November 14, 2018

Chronic thromboembolic pulmonary hypertension (CTEPH) is a disease associated with pulmonary embolism (PE), a life-threatening blood clot that usually forms in a vein deep in the legs and travels to the lungs.

Facebook Live CTEPH Chat with Dr. Gustavo Heresi

Gustavo A. Heresi, M.D., M.S., director of the pulmonary vascular and CTEPH program for the Respiratory Institute at Cleveland Clinic, is joining us on Nov. 14 at 6 p.m. EST for our CTEPH Awareness Day Facebook Live Event. Dr. Heresi has focused his research efforts on his specialty interests, including diagnosis and treatment of CTEPH. He is board certified in internal medicine, pulmonary disease and critical care medicine. Dr. Heresi will field questions from the audience regarding their CTEPH concerns.

On Nov. 14 at 6 p.m. EST, the Facebook Live CTEPH Chat video will appear here:

CTEPH Flier

It is vital for all pulmonary hypertension patients to make sure that they have received all the necessary tests required for a proper diagnosis. To accurately diagnose PH, doctors must use a right heart catheterization. Every patient should also be tested to rule out the possibility of CTEPH. For many, the first step is getting a ventilation/perfusion (V/Q) scan. Download this print flyer that describes the V/Q scan and tells the story of Angela Michelle, who was misdiagnosed for years before a CTEPH diagnosis led to life-changing surgery. Click to download this flier.

Facebook Cover Photo

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Twitter Cover Photo

Examples of Tweets

Pulmonary embolism (PE) survivors with continued symptoms after 6 months of treatment should be evaluated for chronic thromboembolic pulmonary hypertension (CTEPH). Learn more about CTEPH here: www.phassociation.org/CTEPH  #TheRightHeart #LearnAboutCTEPH

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Chronic thromboembolic pulmonary hypertension (CTEPH) is caused by chronic blood clots in the lungs that become scar-like tissue blocking or narrowing the pulmonary arteries. #LearnAboutCTEPH by visiting www.phassociation.org/CTEPH #TheRightHeart

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Sample Social Media Posts for Facebook & Instagram

Chronic thromboembolic pulmonary hypertension (CTEPH) is a form of pulmonary hypertension (PH) caused by clots in the lungs (pulmonary embolism). One in 25 of the 600,000 people who suffer a pulmonary embolism each year could develop CTEPH. www.phassociation.org/CTEPH #TheRightHeart #LearnAboutCTEPH

Pulmonary embolism (PE) survivors with continued symptoms after 6 months of treatment should be evaluated for chronic thromboembolic pulmonary hypertension (CTEPH). Learn more about CTEPH here: www.phassociation.org/CTEPH #TheRightHeart #LearnAboutCTEPH

Chronic thromboembolic pulmonary hypertension (CTEPH) is caused by chronic blood clots in the lungs that become scar-like tissue blocking or narrowing the pulmonary arteries. A pulmonary thromboendarterectomy (PTE) procedure is typically performed to remove the clots that form in the lungs. www.phassociation.org/CTEPH #TheRightHeart #LearnAboutCTEPH

Hashtags:

#TheRightHeart

#LearnAboutCTEPH

Sharable CTEPH graphics

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CTEPH Brochures

Webinars for Patients and Caregivers

These webinars are part of PHA Classroom, an online educational platform designed for PH patients and families on a variety of medical and lifestyle topics.

Online Courses for Medical Professionals

PHA Online University offers online courses with CME/CE credits for medical professionals.

Thank you to Bayer for its generous sponsorship of CTEPH Awareness Day.