CTEPH Awareness Day

November 13, 2019

Chronic thromboembolic pulmonary hypertension (CTEPH) is a disease associated with pulmonary embolism (PE), a life-threatening blood clot that usually forms in a vein deep in the legs and travels to the lungs.

Highlights from CTEPH Awareness Day 2018

Facebook Live CTEPH Chat with Dr. Gustavo Heresi

Gustavo A. Heresi, M.D., M.S., director of the pulmonary vascular and CTEPH program for the Respiratory Institute at Cleveland Clinic, joined us on Nov. 14 for our CTEPH Awareness Day Facebook Live Event. Dr. Heresi has focused his research efforts on his specialty interests, including diagnosis and treatment of CTEPH. He is board certified in internal medicine, pulmonary disease and critical care medicine. Dr. Heresi fielded questions from the audience regarding their CTEPH concerns.


It is vital for all pulmonary hypertension patients to make sure that they have received all the necessary tests required for a proper diagnosis. To accurately diagnose PH, doctors must use a right heart catheterization. Every patient should also be tested to rule out the possibility of CTEPH. For many, the first step is getting a ventilation/perfusion (V/Q) scan. Download this print flyer that describes the V/Q scan and tells the story of Angela Michelle, who was misdiagnosed for years before a CTEPH diagnosis led to life-changing surgery. Click to download this flier.

CTEPH Brochures

Webinars for Patients and Caregivers

These webinars are part of PHA Classroom, an online educational platform designed for PH patients and families on a variety of medical and lifestyle topics.