find a Caregiver Mentor

As a PH caregiver, you’re the first person your loved one turns to for help, but sometimes you need help, too! Caregiver mentors can direct you to resources and provide support and advice so you don’t have to do it all on your own. 

Our email mentors are volunteer patients and caregivers. If you ever have any questions or concerns about anything you experience please contact us at

Browse the lists below to choose the PH Email Mentor right for you.


Bill - Parent to his young-adult daughter with PH


Evan - Caregiver to her adult son with PH


Mitzi - Caregiver to her teen-aged daughter with PH


Jane - Caregiver to her young-adult daughter with PH


Taylor - Bereaved caregiver of a parent with PH


Joni - Spouse of an adult with PH

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.