LEARN |CONNECT
LEARN |CONNECT

A FREE EVENT FOR PATIENTS AND CAREGIVERS

Learn from PH experts in sessions and interactive presentations. Meet other patients and families living with PH. PHA on the Road is a chance to learn what you need to know to manage your health, get lifestyle tips and make some friends who understand what life with PH is like.

“These [PHA on the Road programs] are great and invaluable.  I hope to attend more in the future.”

Janessa Curnow, 2018 Milwaukee, Wisc. PHA on the Road Participant

“I had no idea that there were different kinds of diagnoses when it came to PH. Now I have a better understanding of my mother’s condition and why she has gotten the treatment she has.”

Rebecca Ortega, 2018 Milwaukee, Wisc. PHA on the Road Participant

“I wish I had all the information I was given at PHA on the Road when I was first diagnosed because it was extremely helpful.”

2018 Long Beach, Calif. PHA on the Road Participant

“Informative, fun, filling, delicious, easy parking…everything was great.  Thanks to PHA for funding this event. I hope other PH patients and caregivers throughout the United States enjoy this event as much as my partner and I.”

Stefanie Leonard, Long Beach, Calif. PHA on the Road Participant

“Thank you so much for offering this forum. I needed a quick “dunk” into information and understanding this newly diagnosed disease. You have given me comfort, hope and resources!”

2018 Milwaukee, Wisc. PHA on the Road Participant

“This was my first time doing any kind of PH event and it exceeded all my expectations. Learned a lot of new information and met some wonderful new friends who understand what I’m going through.”

Jennifer Wilcock, 2018 Long Beach, Calif. PHA on the Road Participant

“My first opportunity to meet with others living with PH. Came away with so many tips, encouragement and a support group in my area to attend. Thank you PHA and sponsors for On the Road!”

Sherry Pierce, 2017 Providence, R.I., PHA on the Road participant

“This event was very helpful to me to better understand the disease. I left feeling my son will improve.

Bill Mellin, Providence, R.I., PHA on the Road participant

“Excellent conference. Lots of useful information which was presented in a down-to-earth manner.”

Pittsburgh PHA on the Road participant

“I’ve been to other support group education programs. This was clearly the best all around …”

2017 Pittsburgh, PHA on the Road participant

“I’ve had PAH now for 14 years, and this is my third PHA on the Road. I have always come away having learned something new. PHA on the Road is a great educational source for both the newly diagnosed and long-term survivors.”

2017 Pittsburgh, PHA on the Road participant

“Overall A+, first-rate conference … thank you to all the staff at PHA for putting on a first-rate show!”

2017 Providence, R.I., PHA on the Road participant

PHA on the Road is a blessing to all and special to the patients that cannot travel to the national conference.”

Stephanie Layer, 2017 St. Paul, Minn., PHA on the Road participant

“A worthwhile learning experience.”

2017 Portland, Ore., PHA on the Road participant

PHA ON THE ROAD

PHA on the Road is a free education and networking event for pulmonary hypertension (PH) patients and their families. This patient-focused program offers presentations by PH expert physicians and interactive Q&A sessions with PH-treating health care professionals. PHA on the Road is an opportunity to learn from PH experts about what you need to know to manage every aspect of your health.

This program also offers several opportunities to meet others in the area who are living with PH and understand the challenges of life with this disease. You’ll learn lifestyle tips along the way on how to live your best life with PH. If you cannot join us for the whole day – no problem! Please register and attend the sessions you can.

PHA held events in San Francisco on Aug. 10, 2019, and Kansas City, Kan., on Oct. 12, 2019. Check back to this page for updates on events for 2020.

Highlights:

  • Kids’ Room for complimentary day-of child care services (kids 3-17; no diapers please).
  • Complimentary breakfast, lunch, coffee and snacks.
  • Complimentary self-parking.
  • Support group sessions and interactive presentations.

Common Session Topics at PHA on the Road:

  • Diagnosing PH: Tests, tests and more tests.
  • Communicating and advocating for yourself in a PH emergency.
  • Finding insurance coverage and making it work.
  • Healthy diet and lifestyle choices in PH: Managing your diuretics and fluids.
  • The important benefits of exercise and pulmonary rehabilitation programs in PH.
  • Oxygen: How to manage it at home, at work and on the go.
  • What’s on the horizon: Clinical trials and new treatments.

DIAMOND SUPPORTER

GOLD SUPPORTER

United Therapeutics Corporation

SILVER SUPPORTERS

Bayer
Gilead Sciences, Inc.

BRONZE SUPPORTER

Acceleron

This is a program of the PHA Community PH Education Fund.