PHA On the Road 2018-01-02T21:45:55+00:00


Learn from PH experts in sessions and interactive presentations. Meet other patients and families living with PH. PHA on the Road is a chance to learn what you need to know to manage your health, get lifestyle tips and make some friends who understand what life with PH is like.

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Attend in one of four cities across the United States

St. Paul, Minn.
Providence, RI
Portland, Ore.
Pittsburgh, Penn.
St. Paul

“This was an event that I am happy to be at. I learn more every day. I was able to meet many people, listen and am grateful! I will be at Conference in Orlando in 2018.”

2016 PHA on the Road Attendee, Sarah Brackett

“Fantastic program! Very well organized. Brought pearls of knowledge to patients, both new and long term. Thank you for a well-organized event!”

2016 Washington, D.C. PHA on the Road attendee

“I have had PH for 16 years, been to at least 5 conferences, and attended PHA on the Road in Philly. I am in awe that I have learned something new at every event. Just 3 months ago, I attended Conference and still learned new things today.”

2016 PHA on the Road attendee


2017 PHA on the Road events have already occurred. Sign up for PHA News to receive announcements about 2018 dates!

PHA on the Road is a FREE day-long education and networking program. This patient-focused program offers educational presentations by PH expert physicians, interactive question and answer sessions with health care professionals and other patients, opportunities for families to meet others living with PH. PHA on the Road is an opportunity to learn from PH experts about what you need to know to manage every aspect of your health, get some lifestyle tips and make some friends who “get it.”

PHA was “on the road” in four cities in 2017 to make connections with families living with PH.

St. Paul, Minn. – Saturday, June 24, 2017

Providence, RI – Saturday, July 29, 2017

Portland, Ore. – Saturday, Aug. 12, 2017

Pittsburgh, Penn. – Saturday, Sept. 9, 2017


  • Kids’ Room for complimentary day-of child care services (kids 3-16; no diapers please)
  • Complimentary breakfast, lunch, coffee and snacks
  • Complimentary valet parking
  • Support group sessions and interactive presentations

Everyone is welcome to attend, so please invite your friends and family. If you have further questions, please contact Lori L. at or 301-565-3004 ext. 744. We’ll see you “on the road!”

Session topics often covered at PHA on the Road:

  • Diagnosing PH: Tests, tests and more tests
  • Communicating and advocating for yourself in a PH emergency
  • Finding insurance coverage and making it work
  • Healthy diet and lifestyle choices in PH: Managing your diuretics and fluids
  • The important benefits of exercise and rehab programs in PH
  • Oxygen: How to manage it at home, at work and on the go
  • What’s on the horizon: Clinical trials and new treatments

PHA on the Road National Co-Chairs

Terry Fortin, M.D., M.S. Terry Fortin, M.D., M.S.
National PHA on the Road Co-Chair
Duke Univ. Medical Center
Durham, N.C.
Wendy Hill, MSN, FNP-C Wendy Hill, MSN, FNP-C
National PHA on the Road Co-Chair
Cedars-Sinai Medical Center
Beverly Hills, Calif.

More Information Coming Soon!