LEARN |CONNECT
LEARN |CONNECT

A FREE EVENT FOR PATIENTS AND CAREGIVERS

Learn from PH experts in sessions and interactive presentations. Meet other patients and families living with PH. PHA on the Road is a chance to learn what you need to know to manage your health, get lifestyle tips and make some friends who understand what life with PH is like.

Learn More

Attend in one of four cities across the United States

St. Paul, Minn.
Providence, RI
Portland, Ore.
Pittsburgh, Penn.
Pittsburgh
Portland
Providence
St. Paul

“This was an event that I am happy to be at. I learn more every day. I was able to meet many people, listen and am grateful! I will be at Conference in Orlando in 2018.”

2016 PHA on the Road Attendee, Sarah Brackett

“Fantastic program! Very well organized. Brought pearls of knowledge to patients, both new and long term. Thank you for a well-organized event!”

2016 Washington, D.C. PHA on the Road attendee

“I have had PH for 16 years, been to at least 5 conferences, and attended PHA on the Road in Philly. I am in awe that I have learned something new at every event. Just 3 months ago, I attended Conference and still learned new things today.”

2016 PHA on the Road attendee

PHA ON THE ROAD

PHA on the Road is a FREE day-long education and networking program. This patient-focused program offers educational presentations by PH expert physicians, interactive question and answer sessions with health care professionals and other patients, opportunities for families to meet others living with PH. PHA on the Road is an opportunity to learn from PH experts about what you need to know to manage every aspect of your health, get some lifestyle tips and make some friends who “get it.”

PHA will be “on the road” in four cities in 2017 to make connections with families living with PH and to help get their questions answered. Click on a city near you below to learn more and register today!

St. Paul, Minn. – Saturday, June 24, 2017

Providence, RI – Saturday, July 29, 2017

Portland, Ore. – Saturday, Aug. 12, 2017

Pittsburgh, Penn. – Saturday, Sept. 9, 2017

Highlights:

  • Kids’ Room for complimentary day-of child care services (kids 3-16; no diapers please)
  • Complimentary breakfast, lunch, coffee and snacks
  • Complimentary valet parking
  • Support group sessions and interactive presentations

Everyone is welcome to attend, so please invite your friends and family. If you have further questions, please contact Lori L. at LoriL@PHAssociation.org or 301-565-3004 ext. 744. We’ll see you “on the road!”

Session topics often covered at PHA on the Road:

  • Diagnosing PH: Tests, tests and more tests
  • Communicating and advocating for yourself in a PH emergency
  • Finding insurance coverage and making it work
  • Healthy diet and lifestyle choices in PH: Managing your diuretics and fluids
  • The important benefits of exercise and rehab programs in PH
  • Oxygen: How to manage it at home, at work and on the go
  • What’s on the horizon: Clinical trials and new treatments

PHA on the Road National Co-Chairs

Terry Fortin, M.D., M.S. Terry Fortin, M.D., M.S.
National PHA on the Road Co-Chair
Duke Univ. Medical Center
Durham, N.C.
Wendy Hill, MSN, FNP-C Wendy Hill, MSN, FNP-C
National PHA on the Road Co-Chair
Cedars-Sinai Medical Center
Beverly Hills, Calif.

More Information Coming Soon!

Session Topics

Topics that will be covered at this year’s events cover all aspects of living with PH, ranging from the medical management of PH, to day-to-day lifestyle issues. See detailed session information in your city for details:

Diagnosing PH: Tests, tests and more tests

Communicating and advocating in a PH emergency

Healthy diet and lifestyle choices in PH

Living your best life: Tips for emotional and mental wellness

The important benefits of exercise and pulmonary rehabilitation in PH

Traveling with oxygen and PH medications

Managing your medical care from appointments to daily health practices

Support systems: Building a strong foundation as you navigate this disease

Tips for the Caregiver: Help your loved one and yourself

Tips on navigating insurance and treatment obstacles

Clinical trials and new treatments

Event Details

PHA on the Road provides:

Complimentary breakfast and lunch

Free valet parking

Free child care for ages 3-16

Kids’ Room

PHA will provide complimentary childcare in the Kids’ Room for children and teens (patients and family members 3-16 years of age; no diapers please) who accompany their parents to PHA on the Road. Fun activities will be provided in the Kids’ Room. There is no charge for the Kids’ Room, but PHA on the Road registration and Kids’ Room reservations are required.

To register your children for the PHA on the Road Kids’ Room, please provide information on your registration form about each child in your family who plans to attend the forum.

For questions about the Kids’ Room, contact Meetings@PHAssociation.org or 301-565-3004 x811.

Patient and Family Services

Attending a PHA on the Road forum is an exciting educational opportunity not to be missed. PHA provides a number of patient services during the event to help you manage your disease while you are away from home. Please consult with your physician about your travel plans.

Information for Patients Attending PHA on the Road:

  • Please follow the motto, “Always be over prepared.”
  • You are responsible for bringing all medications and supplies (including oxygen) you will need during the forum. Oxygen may be stored at the Patient Rest Stop.
  • PHA will not be able to offer refrigerators for holding medication at the forum. If you require a refrigerator for medication and you are staying overnight at the hotel, you may request a refrigerator for your room.
  • Ice packs will be available in a freezer throughout the day at the Patient Rest Stop at the forum for your use.
  • Patients who are on oxygen must make their own arrangements before arriving at the forum.

 

DIAMOND
SUPPORTER

PLATINUM
SUPPORTERS

GOLD
SUPPORTER
Actelion Pharmaceuticals US, Inc. Gilead Sciences, Inc.
United Therapeutics Corporation		 Bayer HealthCare
This is a program of the PHA Medical Education Fund, made possible through educational grants from our supporters.