EMAIL SIGN UP
OTR Web Banner 748x156

Washington, D.C.

Schedule of Events

On the Road On the Road Speaker On the Road Speaker

8:00 a.m. – 10:00 a.m.

Registration

8:00 a.m. – 9:30 a.m.

Continental Breakfast

8:30 a.m.

Kids’ Room & Patient Rest Stop open

9:00 a.m. – 10:00 a.m.

General Session #1: Official Opening and Welcome

  • PH 101: My PH is not the same as your PH: Understanding how types of PH differ

10:00 a.m. – 10:10 a.m.

Break

10:10 a.m. – 11:00 a.m.

Support Group Sessions (Concurrent)

  • Caregivers: Support group for people who love someone with PH (Caregivers only, please)
  • Living with PH: Support group for PH patients of more than 3 years
  • Newly diagnosed: Support group for PH patients of less than 3 years
  • Parents: Support group for parents of children with PH
  • Scleroderma: Support group for people with PH associated with Scleroderma

11:00 a.m. – 11:30 a.m.

Coffee Break

11:30 a.m. – 12:20 p.m.

Medically Led Sessions #1 (Concurrent)

  • Communicating and advocating in a PH emergency
  • Healthy diet and lifestyle choices in PH: Managing your diuretics and fluids
  • Oxygen: How to manage it at home, at work and on the go
  • The unique challenges of having PH with connective tissue disease

12:20 p.m. – 12:35 p.m.

Break

12:35 p.m. 1:25 p.m.

Medically Led Sessions #2 (Concurrent)

  • Advance care planning, palliative care and hospice
  • Finding insurance coverage and making it work
  • The important benefits of exercise and rehabilitation programs in PH
  • Special topics in the health of women with PH

1:25 p.m. – 2:35 p.m.

Networking lunch and Keynote presentation
Kids’ Room will close during lunch.

2:35 p.m. – 2:45 p.m.

Break

2:45 p.m. – 3:35 p.m.

Patient & Family Led Sessions (Concurrent)

  • Caring for the Caregivers – Coping tips for caregivers who are stressed, overwhelmed and overworked (Caregivers only, please)
  • Filling your toolkit for the long-term battle: Improving your medical care from appointments to daily health practices
  • Living your best life – Coping tips for patients who are stressed, sad or struggling
  • Support Systems: Where do you go when your family and friends do not understand?

3:35 p.m. – 4:00 p.m.

Coffee Break

4:00 p.m. – 5:00 p.m.

General Session #2:

  • PH 202: Where we are, where we are going, and how do we get there?

5:00 p.m.

Program Concludes
Kids’ Room & Patient Rest Stop close

DIAMOND
SUPPORTER

PLATINUM
SUPPORTER

GOLD
SUPPORTERS

Actelion Pharmaceuticals US, Inc. Gilead Sciences, Inc.

Bayer HealthCare
United Therapeutics Corporation

 
This is a program of the PHA Medical Education Fund, made possible through educational grants from our supporters.

 

FacebookTwitterInstagram iconLinkedInYouTube

For optimal viewing of PHAssociation.org, please use a standards-compliant browser such as Google Chrome or Firefox.

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
Webmaster@PHAssociation.org
    Privacy Policy    Terms of Use    Provide Feedback & Report Bugs

Designed by Matrix Group International, Inc.® | © 2017 Pulmonary Hypertension Association. All Rights Reserved.

BBB Accredited Charity BEST in AmericaCharity Navigator
NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.