EMAIL SIGN UP

Transplant Advisory Board

PHA Advisory Boards

The Transplant Advisory Board is specifically concerned with the broad range of topics surrounding transplants in the PH community. Members are leaders in the transplant community online and advise PHA in developing programs and resources for anyone affected by a transplant—whether it is a possibility in their future or a reality of their daily lives. Members are asked to stay up-to-date with PHA’s operations to ensure inclusivity with regard to their community’s needs and experiences.

Submit a question or comment to the Transplant Advisory Board

Transplant Advisory Board Job Description (PDF)

Shirley C

Shirley C

Member of PHA since 1993. PH diagnosis 12/90. Heart and double lung transplant at Methodist, Houston, 11/2008. Taught school in Texas and Alaska. Hope my experience can help.

Shelby A

Shelby A

I was diagnosed with PH at age 13 and lived with the condition for about 12 years. In June 13 2016, at age 25 I received a double lung transplant and have done very well. It wasn't until after my surgery that I got involved with PHA. I'm looking forward to working with others as they go through the process of getting a transplant.

 

Amy Ford

Patient

Don't let PH run your life. You are in charge.

Angie E.

Angie E

Patient

I am a wife and mother of three. While working as a nurse I was diagnosed with IPAH at the age of 29. I received a successful double lung transplant in 1995. Following transplant I was able to be involved in my children's activities, ie. Girl Scout leader, Baseball mom, Band mom, etc. My children have become successful young adults. Currently I have been dependent on oxygen for the last year from numerous infections and Chronic rejection and have asked to be listed for another transplant. My wonderful husband is my caregiver and is my rock! I have met my donor's family and have been invited to her younger sister's wedding this summer. It would be a wonderful honor to represent my donor at such a momentous event!

 

Fill out my online form.

FacebookTwitterInstagram iconLinkedInYouTube

For optimal viewing of PHAssociation.org, please use a standards-compliant browser such as Google Chrome or Firefox.

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
Webmaster@PHAssociation.org
    Privacy Policy    Terms of Use    Provide Feedback & Report Bugs

Designed by Matrix Group International, Inc.® | © 2017 Pulmonary Hypertension Association. All Rights Reserved.

BBB Accredited Charity BEST in AmericaCharity Navigator
NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.