About PH Care Centers2023-09-26T11:12:13-04:00

Pulmonary Hypertension Care Centers

The Pulmonary Hypertension Association’s Scientific Leadership Council, 28 global leaders in the field of pulmonary hypertension, have spearheaded the PHA-Accredited PH Care Centers (PHCC) initiative to establish a program for accreditation of centers with special expertise in pulmonary hypertension (PH), particularly pulmonary arterial hypertension (PAH), to raise the overall quality of care and outcomes in patients with this life-threatening disease.

Why Accreditation is Needed

Once considered rapidly fatal, PAH can now be treated with many medications, all developed in just the past two decades. Despite medical advances, the median time from onset of symptoms to PAH diagnosis is still 1.1 years, and many patients will see three or more different physicians over this period before they are properly diagnosed. Since early 2011, PHA’s Scientific Leadership Council has developed the PHCC initiative to assure outstanding care in pulmonary hypertension.

More Information

Doctor with patient

The PHA-Accredited PH Care Centers (PHCC) program is an initiative of PHA’s Scientific Leadership Council to accredit centers in the U.S. in order to raise the level of care for individuals with pulmonary hypertension (PH). Accreditation is based on a center’s overall commitment to PH patients, breadth of involved health care professionals and scope of services provided.

How to Find a PH Specialist In the PHCC Network

PHA has created a map to assist in locating a PHCC near you.

Map of accredited PH care centers

PH specialists in the PHCC network also can be found in our Doctors Who Treat PH directory. They will be designated as part of an accredited PH program in your search.

How PH Care Centers Are Expected to Improve Your Medical Care

  • Patients are better informed about comprehensive PH care
  • Patients have improved access to Centers with expertise in PH
  • Patients experience less time between symptom onset and diagnosis
  • A medical community better informed about standards of PH care
  • Therapies are appropriately used to improve long-term outcomes
  • Increased opportunities for collaboration between Centers for clinical care and PH research

The Two Types of Centers

Two types of centers are accredited: Centers of Comprehensive Care (CCC) and Regional Clinical Programs (RCP). Both accredited CCCs and RCPs will have demonstrated a commitment to providing expert-level care based on pulmonary arterial hypertension (PAH) consensus guidelines.

PHA Centers of Comprehensive Care

Centers of Comprehensive Care

A PHA-Accredited Center of Comprehensive Care is a highly organized, full-time PH Center that proficiently evaluates PH patients based on published evidence-based guidelines and also provides expert treatment of pulmonary arterial hypertension (PAH) patients with all of the FDA-approved therapies. CCCs also make important contributions to PH research and education.

PHA Regional Clinical Program

Regional Clinical Programs

A PHA-Accredited Regional Clinical Program is a regional PH Center that proficiently evaluates PH patients based on published evidence-based guidelines and also provides expert treatment of PAH patients with all non-parenteral therapies. An RCP must collaborate with its regional CCCs by referring patients that may benefit from opportunities unavailable at the RCP, including the initiation of advanced parenteral therapies and participation in clinical research protocols.

Developing and Implementing the PHCC Program

In September 2011, members of the PHA Board of Trustees, the PHA Scientific Leadership Council, and other key stakeholders in the PH community approved the PHCC initiative in concept. A steering committee and task forces were organized and staffed to address accreditation criteria, program implementation, registry development, communication to key stakeholders and financial sustainability. The members below provided valuable contributions, which include: researching, accumulating and documenting information, developing logic models, defining action steps, building financial projections and validating the program content.

Murali Chakinala, MD (PHCC Chair) Washington University in Saint Louis
Rino Aldrighetti PHA
Richard Channick, MD Harvard Medical School
C. Gregory Elliott, MD University of Utah
Serpil Erzurum, MD The Cleveland Clinic Foundation
Karen Fagan, MD University of South Alabama
Bob Gray PHA
Michael Patrick Gray, MPH PHA
Carl Hicks PHA
Wendy Hill, RN, MSN VA Greater LA Healthcare System
Steven Kawut, MD, MS (Patient Registry Task Force Chair) University of Pennsylvania
Vallerie McLaughlin, MD University of Michigan
Stephen Mathai, MD, MHS Johns Hopkins University
Olivia Onyeador, MHA PHA
Ron Oudiz, MD (Criteria Task Force Chair) Harbor UCLA Medical Center
Abby Poms, RRT, RCP (Implementation Task Force Co-Chair) Duke University
Jeffrey Sager, MD, MSCE Cottage Hospital
Robert Schilz, DO, PhD Case Western Reserve University
Traci Stewart, RN, MSN University of Iowa
Darren Taichman, MD University of Pennsylvania
Victor Tapson, MD Cedars-Sinai
Corey Ventetuolo, MD, MS Brown University
Joel Wirth, MD (Implementation Task Force Co-Chair) Maine Medical Center
Roham Zamanian, MD (Funding Task Force Chair) Stanford University

PHCC Initiative Mission Statement

The purpose of the PHA-Accredited Pulmonary Hypertension Care Centers (PHCC) initiative is to establish a program of accredited centers with expertise in pulmonary hypertension that aspires to improve overall quality of care and ultimately improve outcomes of patients with pulmonary hypertension, particularly pulmonary arterial hypertension, a rare and life-threatening group of diseases.

Why the Need for Accreditation?

Despite the availability and success of PAH-targeted therapeutic options over the past two decades, there are still shortcomings with the diagnosis and management of PAH. One recent study observed that expert recommended diagnostic algorithms were not being followed to completion in up to 94% of PAH patients, and nearly 60% of PAH referrals to expert centers already on therapy were on so contrary to published guidelines. In addition, despite the available medical therapies, long-term outcomes are still not optimal as many patients still die from PH, require transplantation or require hospitalization.

PH Care Centers: What You Need to Know

Two types of centers are be accredited: Centers of Comprehensive Care (CCC) and Regional Clinical Programs (RCP). Please note that applications for Pediatric Regional Clinical Programs are not currently being accepted. Learn more about the PH Care Centers initiative:

PHCC News and Research

How We United for World PH Day

The Pulmonary Hypertension Association joined the international PH community May 5 to celebrate World PH Day. To raise awareness, the PH community shared social media posts about common symptoms, facts and conditions associated with PH. See some posts from around the world.

Join Us for Webinar on Heritable PAH

Join the Pulmonary Hypertension Association, TBX4Life and Fundación Contra la Hipertensión Pulmonar Tuesday, June 11 for a new PHA Live webinar. The Fundamentals of Genetic Testing webinar will address heritable pulmonary arterial hypertension. Learn more about types of genetic testing for PAH, benefits and risks and understanding your test results.

Make PHA 2024 a Family Vacation To Remember

Thinking of attending PHA 2024? Consider making your trip a family vacation. All children are welcome to join the fun in Indianapolis Aug. 15-18, whether they have PH or are children of a patient, caregiver or health care provider. PHA 2024 International PH Conference and Scientific Sessions includes activities in our Kids Room, a field trip to the Indianapolis Children’s Museum and more.

Professionals: Strengthen your PH expertise with new boot camp

PHA’s PH Boot Camp offers in-depth, case-based education with a particular emphasis on pulmonary arterial hypertension. Receive three hours of continuing education credits for completing all five modules. This PHA Online University course is for health care professionals new to the field and experienced practitioners. Enroll today and share with colleagues who might benefit from this course.

CEO Update: How Are You Marking World PH Day?

As World Pulmonary Hypertension Day approaches, please join PHA and the global PH community to mark this longstanding and important awareness campaign. World PH Day is May 5, but many related events take place throughout the month. This global initiative organized by PHA Europe underscores the importance of early diagnosis, nurturing hope, guaranteeing accessible treatment for people with PH, providing comprehensive care, and striving towards a definitive cure.

Workshop, Walk Participants Find Hope in Houston

There was no question Sofia Esteves would drive three hours to Houston April 6-7 for the most recent PHA Connects: PH Community Workshop. “This is a pivotal moment in PH because of all the new advancements in treatment options,” Esteves said. Learn more about the weekend of learning and community, which also featured a Pulmonary Hypertension Association O2breathe fundraising walk.

Congress Responds to Oxygen-Access Concerns

Thanks to the dedication of PHA advocates and other patient organizations, the Supplemental Oxygen Access Reform Act has been introduced to the House of Representatives, as well as the Senate. To continue momentum for the legislation, Pulmonary Hypertension Association CEO Matt Granato and Katie Kroner, vice president of advocacy and patient engagement, recently visited the offices of several members of Congress.