Last updated: October 24, 2025

This summary is for convenience and does not replace the full privacy policy.

The Pulmonary Hypertension Association (“PHA,” “we,” or “us”) respects and values your trust. This Privacy and Donor Policy explains how we collect, use, share and protect personal and/or donor information. It applies to all interactions with PHA, including our website, services, programs, events, and donor activities.

  1. Information We Collect

We collect personal and/or donor information you provide directly, as well as limited information collected automatically. This may include:

  • Name, mailing address, email, phone number, date of birth, gender, and other information.
  • Donation details, payment information, and preferences.
  • Voluntarily provided sensitive data (e.g., health information related to pulmonary hypertension relevant to providing services to the PH community).
  • IP address, device/browser data, website activity, and cookie preferences.

We may receive additional information from partner organizations or publicly available sources to support outreach and services.

  1. How We Use Information

PHA uses collected information to:

  • Process donations, memberships, and event registrations.
  • Provide requested services and information.
  • Communicate with you about events, programs, and opportunities to support PHA.
  • Personalize website experiences and improve outreach.
  • Comply with legal, tax, and reporting requirements.

In addition to supporting our mission, PHA may compile and share aggregated, de-identified data with trusted partners, including industry stakeholders, to advance research, education, and program development.

No personal or identifiable information is ever sold or shared without your explicit consent.

  1. How We Share Information

We share personal information only as necessary to support our mission:

  • Trusted third-party service providers (e.g., payment processors, email vendors, event partners).
  • Partner organizations for co-hosted programs or awareness campaigns.
  • Legal or regulatory agencies as required by law.

We require service providers to protect your data and use it only for contracted purposes. PHA does not sell or trade donor personal information. Donor lists are never shared externally for marketing.

  1. Donor Privacy Commitments

PHA is committed to respecting donor privacy. Donor information is used solely to process donations, issue acknowledgments, and communicate relevant updates. Donors may request to remain anonymous or limit communications. Unless a donor requests otherwise, their name may be listed in donor recognition materials. Donation amounts and personal contact details are kept confidential.

  1. Your Rights and Choices

You have the right to access, correct, or request deletion of your personal information. You can also opt out of promotional communications at any time.

  • Email: Use the unsubscribe link in messages or update your preferences on your profile online.
  • SMS: Reply STOP or UNSUBSCRIBE.
  • Cookies/ads: Adjust settings via browser or ad preference platforms.

California and GDPR Rights

California residents may request details about information shared for marketing purposes, and exercise rights under the CCPA/CPRA. EU/UK visitors may exercise GDPR rights, including access, correction, deletion, and objection to processing. PHA does not sell personal data.

  1. Data Security

PHA uses physical, electronic, and administrative safeguards . Although no system is 100% secure, we maintain encryption, access controls, and regular security reviews.. Although no system is 100% secure, we maintain encryption, access controls, and regular security reviews.. Although no system is 100% secure, we maintain encryption, access controls, and regular security reviews.. Although no system is 100% secure, we maintain encryption, access controls, and regular security reviews.. Although no system is 100% secure, we maintain encryption, access controls, and regular security reviews.

  1. Children’s Privacy

PHA does not knowingly collect personal information from children under 13 without parental consent, in compliance with COPPA.

  1. Public Forums and Third-Party Links

PHA may participate in online forums and provide links to external websites. These spaces are public or managed by third parties. We are not responsible for third-party privacy practices.

  1. Updates to This Policy

PHA may update this policy to reflect programmatic or legal changes. Updates will be posted with a new “Last updated” date.

  1. Contact Us

For questions or to exercise your privacy rights, contact:
Pulmonary Hypertension Association
Email: Communications@PHAssociation.org