Share Your Story

Your voice is powerful. The pulmonary hypertension (PH) community is built on the personal stories of thousands of patients, caregivers, friends, care providers and people like you. Each story can be a powerful tool for raising awareness, advocating for legislation that benefits people living with PH, and ultimately saving lives and working towards a cure.

Join the growing number of people sharing their story online and through the media. Complete the form below and a member of PHA’s communications staff will help you with your goals, including:

  • Contacting the media
  • Telling your story
  • Working with reporters and get the word out about PH
  • Writing a letter to the editor or op-ed
  • Drawing participants to your event or support group by promoting it in the media
Fill out my online form.

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.