Support. Friendship. Hope.

Living with a rare disease can sometimes feel lonely. But you are not alone.

PHA has a strong network of local support groups and an active online community. By reaching out to people who’ve been there, you will find fast PHriends who offer support, information and hope for the future. You can connect with the community however you prefer, whether that’s on the web, on the phone, or in face-to-face support group meetings. If you have any questions or concerns, please contact us at or call 301-565-3004 x777.