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AA – Calendar Test2022-11-28T15:09:07-05:00

Support Group Meeting Calendar

Information on this page is designed for caregivers and patients, not for solicitations or commercial use.

Support Group Leaders: Submit your event to the calendar and for a postcard mailing (will be prompted to sign in)
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29 Nov
November 29, 2022    
11:00 am EST - 12:00 pm EST

Topic: TBA

Leader: Bonnie Patricelli

Email: ten.tsacmoc@anobanob

Phone Number: 856-904-6867

03 Dec
December 3, 2022    
11:00 am EST - 1:00 pm EST

Topic: Holiday Luncheon

Leader: Chris Calvert

Email: cc.trevlac@96selcric

Phone Number: 804-357-1454

03 Dec
December 3, 2022    
12:00 pm EST - 2:00 pm EST
$0.00

Topic: Emergency Preparedness and Insurance

Leader: Patricia Ofori

Email: moc.liamg@puorghpwL

Phone Number: 646-504-8506

03 Dec
December 3, 2022    
12:00 pm CST - 2:00 pm CST
$0.00

Topic: Pulmonary hypertension: Understanding the basics (scleroderma) Living with PAH or CTEPH: Experiencing Stress with Your Condition

Speaker: Michael Cuttica, MD

Sponsor: Bayer Healthcare

Leader: Lynn Bastian

Email: ten.tta@naitsabml

Phone Number: 630-621-6280

03 Dec
December 3, 2022    
12:00 pm PST - 2:00 pm PST
$0.00

Topic: open forum

Leader: Pat Graham

Email: moc.liamg@caspuorghp

Phone Number: 410-353-0350

04 Dec
December 4, 2022    
1:00 pm EST - 3:00 pm EST

Topic: Holiday Party

Leader: Michelle Reller

Email: moc.oohay@rellerlm

Phone Number: 812-489-1069

04 Dec
December 4, 2022    
3:00 pm EST - 4:30 pm EST
$0.00

Topic: Christmas meeting

Leader: Brenda Gibson

Email: moc.liamg@742nosbigb

Phone Number: 614-218-2099

04 Dec
December 4, 2022    
4:00 pm PST - 7:00 pm PST
$0.00

Topic: Holiday PHun and Games! Bring a wrapped edible treat for our gift exchange game, it can be homemade or store bought.

Leader: Monica Penaranda, Marisela Navarro

Email: moc.liamg@265adnaranepm, moc.oohay@75_orravanalesiram

Phone Number: 562-639-2053, 323-532-5164

05 Dec
December 5, 2022    
5:00 pm EST - 6:30 pm EST
$0.00

Topic: End of Year and Belated PH Month Celebration

Leader: Rachel Potter

Email: ude.mssm@etutitsniyrotaripser

 

08 Dec
December 8, 2022    
12:00 pm EST - 1:00 pm EST
$0.00

Topic: Creating Low Sodium Meals with Flavor

Speaker: Judy Steffes, MS, RDN, LD

Leader: Tammy Stankard

Email: moc.larenegws@draknatst

Phone Number: 440-384-9683

08 Dec
December 8, 2022    
8:00 pm EST - 9:00 pm EST
$0.00

Call in to meet others who have lost a loved one to PH. Connect, learn and share strategies and experiences dealing with grief and bereavement. Register for an upcoming call and receive call instructions once registered.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

09 Dec
December 9, 2022    
1:30 pm MST - 2:30 pm MST

Topic: Guiding You Through the Holidays with Pulmonary Hypertension

Speaker: Banner Palliative Care Team

Leader: Carissa Tellinghuisen

Email: moc.htlaehrennab@xobnihapivc

Phone Number: 970-810-3776

10 Dec
December 10, 2022    
9:30 am EST - 11:00 am EST

Topic: My Story as a PH Patient, Former Chair of PHA, Writer, Educator, Speaker, Artist and Dancer

Speaker: Colleen Brunetti

Leader: Mary Clare McGraw

Email: moc.liamg@shpnotsob

Phone Number: 781-820-4606

10 Dec
December 10, 2022    
11:00 am EST - 3:00 pm EST

Topic: TBA

Leader: Jonette Robinson

Email: moc.oohay@aelettenoJ

Phone Number: 540-818-2813

10 Dec
December 10, 2022    
10:00 am CST - 12:00 pm CST
$0.00

Topic: Updates on treatment & new delivery devices

Speaker: Samy Elhalawani, DO

Leader: Alice Yount

Email: moc.eocsirbsmleh@tnuoya

Phone Number: 952-221-5475

10 Dec
December 10, 2022    
1:00 pm EST - 2:00 pm EST
$0.00

Topic: Open Discussion

Leader: Pat Hellyer

Email: moc.liamg@97reyllehtap

Phone Number: 561-628-5597

10 Dec
December 10, 2022    
1:00 pm EST - 3:00 pm EST
$0.00

Topic: Holiday Celebration

Leader: Mary Hale

Phone Number: 937-926-0095

10 Dec
December 10, 2022    
1:00 pm EST - 3:00 pm EST
$0.00

Topic: Life Beyond PH

Speaker: Karla Cruz, MD, Prisma Health Richland PH Clinic

Leader: Doug Taylor

Email: moc.loa@FSrolyaTD

Phone Number: 803-465-2139

13 Dec
December 13, 2022    
1:00 pm EST - 3:00 pm EST
$0.00

Topic: Traveling and PAH

Speaker: Abhijit Raval, MD

Sponsor: Janssen Pharmaceuticals

Leader: Matthew Schatti, Joyce Kossman

Email: ten.tta@yaj.ecyoj

Phone Number: 757-388-9138

13 Dec
December 13, 2022    
1:30 pm EST - 2:30 pm EST

Topic: New Normal

Speaker: Therese Sargent, APRN

Sponsor: Janssen Pharmaceuticals

Leader: Alicia Peters

Email: ude.lfu.xaj@sretep.aicila

Phone Number: 904-244-1758

14 Dec
December 14, 2022    
8:00 pm EST - 9:00 pm EST
$0.00

Call in to connect, learn, and share strategies and experiences caring for your child with PH. Register for an upcoming meeting and receive call instructions once registered.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

15 Dec
December 15, 2022    
8:00 pm EST - 9:00 pm EST
$0.00

Join this monthly support call to connect with other patients and discuss struggles and triumphs, and to receive support and advice from other PH patients. There is a PH patient present to facilitate introductions and conversation. Join the conversation or simply listen.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

17 Dec
December 17, 2022    
11:00 am PST - 3:00 pm PST

Topic: Mental Health

Speaker: Vijay Balasubramanian, MD

Leader: Arturo Correa, PAH Team

Email: moc.duolcI@29aerrocorutrA, gro.lacidemytinummoc@gninokc

Phone Number: 559-473-8868, 559-459-3803

20 Dec
December 20, 2022    
8:00 pm EST - 9:00 pm EST
$0.00

Join this monthly telephone support group to connect with other CTEPH patients and discuss struggles and triumphs and receive support and advice from others experiencing the same challenges. Register for an upcoming call and receive call instructions once registered.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

21 Dec
December 21, 2022    
8:00 pm EST - 9:00 pm EST
$0.00

Join this monthly support call to connect, learn, and share strategies and experiences with PH caregivers and parents across the country. There is a PH caregiver present to facilitate introductions and present a discussion topic.

Please complete this questionnaire before registering


Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

27 Dec
December 27, 2022    
8:00 pm EST - 9:00 pm EST
$0.00

This meeting is held monthly for young adults with pulmonary hypertension who want to connect with other young adult patients via phone or video conferencing. The call is moderated by two young adult facilitators.

Please complete this questionnaire before registering

Meeting information will be sent to your email address when you submit your registration.

If you don’t receive an email within an hour of registering, contact gro.noitaicossAHP@troppuS.

28 Dec
December 28, 2022    
8:00 pm EST - 9:00 pm EST
$0.00

Únase a esta llamada de apoyo mensual para conectarse con otros pacientes y conversar sobre sus luchas y triunfos, así como para recibir apoyo y consejos de otros pacientes con hipertensión pulmonar (HP). Un paciente con HP facilitará las presentaciones y la conversación. Únase a la conversación o simplemente escuche.

Complete el siguiente cuestionario antes de registrarse

La información de la reunión se enviará a su dirección de correo electrónico cuando envíe su registro.

Si no recibe un correo electrónico dentro de una hora de registrarse, comuníquese con gro.noitaicossAHP@troppuS.

Events on November 29, 2022
29 Nov
Events on December 3, 2022
Events on December 4, 2022
Events on December 5, 2022
05 Dec
Events on December 8, 2022
Events on December 9, 2022
09 Dec
Events on December 10, 2022
Events on December 13, 2022
Events on December 14, 2022
Events on December 15, 2022
Events on December 17, 2022
17 Dec
Events on December 20, 2022
Events on December 21, 2022
Events on December 27, 2022
Events on December 28, 2022

Support Group Meetings

Click on an event and register.

IN - Kentuckiana PH Warriors
Sunday, December 4, 1:00 PM - 3:00 PM EST
Bereavement Telephone Support Group
Thursday, December 8, 8:00 PM - 9:00 PM EST
Parent Telephone Support Group
Wednesday, December 14, 8:00 PM - 9:00 PM EST
Patient Telephone Support Group
Thursday, December 15, 8:00 PM - 9:00 PM EST
CTEPH Telephone Support Group
Tuesday, December 20, 8:00 PM - 9:00 PM EST
Caregiver Telephone Support Group
Wednesday, December 21, 8:00 PM - 9:00 PM EST
Young Adult Telephone Support Group
Tuesday, December 27, 8:00 PM - 9:00 PM EST
Grupo de apoyo telefónico en español
Wednesday, December 28, 8:00 PM - 9:00 PM EST
Parent Telephone Support Group
Wednesday, January 11, 8:00 PM - 9:00 PM EST
Bereavement Telephone Support Group
Thursday, January 12, 8:00 PM - 9:00 PM EST
CTEPH Telephone Support Group
Tuesday, January 17, 8:00 PM - 9:00 PM EST
Caregiver Telephone Support Group
Wednesday, January 18, 8:00 PM - 9:00 PM EST

December 3, 2022

December 4, 2022

December 5, 2022

December 8, 2022

December 9, 2022

December 10, 2022

December 13, 2022

December 14, 2022

December 15, 2022

December 17, 2022

December 20, 2022

December 21, 2022

December 27, 2022

December 28, 2022

January 11, 2023

January 12, 2023

January 17, 2023

January 18, 2023


View the complete calendar

Patient Support Group Meetings

Click on an event and register.

VA - Richmond, Central VA (In Person)
Saturday, December 3, 11:00 AM - 1:00 PM EST
CA - Sacramento (In Person)
Saturday, December 3, 12:00 PM - 2:00 PM PST
IL - Chicago South Side (Virtual)
Saturday, December 3, 12:00 PM - 2:00 PM CST
NY - Lower Westchester County (In Person)
Saturday, December 3, 12:00 PM - 2:00 PM EST
IN - Kentuckiana PH Warriors
Sunday, December 4, 1:00 PM - 3:00 PM EST
OH - Columbus OH (In Person)
Sunday, December 4, 3:00 PM - 4:30 PM EST
CA - Greater Los Angeles (In Person
Sunday, December 4, 4:00 PM - 7:00 PM PST
NY - Mount Sinai (Virtual
Monday, December 5, 5:00 PM - 6:30 PM EST
OH - Southwest General (In Person)
Thursday, December 8, 12:00 PM - 1:00 PM EST
CO - NOCO (Virtual)
Friday, December 9, 1:30 PM - 2:30 PM MST
MA - Greater Boston (Virtual)
Saturday, December 10, 9:30 AM - 11:00 AM EST
MN - Twin Cities (Virtua)
Saturday, December 10, 10:00 AM - 12:00 PM CST

Try a Healthful Holiday Recipe

As Pulmonary Hypertension Awareness Month continues, help us raise awareness by downloading and sharing today’s PH Awareness Month Calendar activity. Try a new recipe or share your favorite tips to help you eat healthfully during the holidays. A low-sodium diet can help people prevent fluid retention or edema.

Hundreds Gather at California Walks to Raise Awareness

Health care professionals, patients, families, caregivers and industry supporters celebrated the start of Pulmonary Hypertension Awareness Month Nov. 5 at California O2breathe walks in Fresno and Monrovia. More than 225 attendees participated in the Central California O2breathe Walk at the UCSF-Fresno Community Regional Medical Center. The ninth annual Monrovia O2breathe PHun Walk attracted more than 200 attendees.

How a New Jersey Support Group Leader Honors Her Late Son

Bonnie Patricelli memorializes her son Ryan Juntti through her volunteer work for the Pulmonary Hypertension Association (PHA). She and Ryan revived PHA’s South Jersey Support Group in 2008, and she continues to co-lead the group since Ryan’s 2015 death. Bonnie’s story appears in the fall issue of Pathlight, PHA’s quarterly member magazine.

Join the Liu Family in Supporting PHA

The Liu family was vacationing in the Netherlands in 2012 when their 2-year-old daughter, Esther, had a heart attack. Two days later, she was diagnosed with pulmonary arterial hypertension, with an unknown cause. Since then, she has received a double lung transplant and travels all over the world with her mother Michelle, a physician and Pulmonary Hypertension Association (PHA) board member, to share their PH journey. Dr. Liu, shares that story as part of PHA’s fall fundraising campaign.

It’s Pulmonary Awareness Month. Help spread the word about PH!

Join the Pulmonary Hypertension Association in November by promoting Pulmonary Hypertension awareness. Visit our PH Awareness Month calendar and toolkit to download shareable resources. This year’s theme is “PHacing the Future Day by Day.” Help us spread the word by sharing our social media posts and resources.

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