ADVOCACY ACTION CENTER

PHA’s Advocacy Action Center provides the tools you need to educate your elected officials about pulmonary hypertension. Check back throughout the year to make your voice heard on legislation and regulation that impacts the PH community.

Support the Safe Step Act

When insurance payers require that someone with PH try and fail a less-expensive PH therapy before getting the medication their physician prescribed, the resulting delay can be devastating.

That’s why PHA supports the Safe Step Act, a bill that limits “step-therapy” or “fail-first” requirements and protects everyone’s access to the therapy that is right for them.

Use PHA’s template to email your U.S. senators and representative and ask them to co-sponsor the Safe Step Act.

Email Now

Increase Funding for NIH and CDC

The National Institutes of Health (NIH) and Centers for Disease Control and Prevention (CDC) lead the U.S. COVID-19 response while continuing their regular work on rare and chronic health conditions, including pulmonary hypertension (PH). As Congress begins work on the 2022 federal budget, remind your legislators that NIH and CDC funding must increase to keep pace with these critical needs.

Email Congress Now!

Share Your PH Story

Many members of Congress don’t understand how pulmonary hypertension (PH) affects every aspect of life for people like you in their states. You can change that. The Pulmonary Hypertension Association (PHA) can help you share your story with lawmakers. Now is a good time to connect with senators and representatives, whether they are newly elected or returning veterans. Make sure fighting PH is among their priorities.

share your story

Stay Involved

When you join PHA’s grassroots advocacy network, we send you the resources you need to stay in touch with your Members of Congress a few times a year about the issues that impact your life. Be heard. Be a PH advocate.

Join the Campaign

Schedule a Meeting with Your Member of Congress

Your members of Congress work for you. Move fighting pulmonary hypertension (PH) to the top of their legislative agenda through planned phone calls, video meetings and visits to their local offices in your home state. Start scheduling your visit by completing the form or contacting PHA at Advocacy@PHAssociation.org or 301-565-3004 x749.

Schedule Your Virtual Visit

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