PHA’s Advocacy Action Center provides the tools you need to educate your elected officials about pulmonary hypertension. Check back throughout the year to make your voice heard on legislation and regulation that impacts the PH community.

When someone with PH seeks medical care, they should be confident about what their health insurance will cover. But more than half of adults surveyed in the U.S. have received an unexpected medical bill for themselves or a family member. Congress is currently negotiating legislation that could help put a stop to these devastating surprise bills.  Email your Members of Congress now and tell them to eliminate surprise medical billing.

Email them now!

Ask Your Senators to Support Copay Assistance

More health insurance plans are forcing people with pulmonary hypertension (PH) to pay twice for their medication. The plans require them to pay their full deductibles out of pocket while also using copay assistance. Some plans refuse to accept non-profit assistance grants to force people with expensive medications off the plan.
In the next few weeks, Congress will have an opportunity to stop these unfair policies at least through 2021 by including an Emergency Access to Marketplace Insurance provision in the next COVID-19 legislation. Ask your senators to support the provision — an important first step toward banning these burdensome, expensive practices.

Email them now!

“For me, it was important to remember that our Members of Congress are people just like us.  When you meet with them, all you have to do is speak clearly and honestly and be prepared with PHA information. Also, having other PHers with you makes it all so much easier.”

Diane Ramirez, PHA Advocate

“I am so happy that I had the opportunity to share about my sister’s situation. I want to do it again.”

Jane Armstead, PHA Advocate

“Being active in advocacy gives me another way to fight PH besides the physical fight. We all have the right to be heard by our elected representatives, so there’s nothing to fear… just do it!”

Perry Mamigonian, PHA Advocate

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