Advocate

PHA’s Advocacy Action Center provides the tools you need to educate your elected officials about pulmonary hypertension. Check back throughout the year to make your voice heard on legislation and regulation that impacts the PH community.

ASK CONGRESS TO SUPPORT THE SAFE STEP ACT

Step therapy shifts an individual from one medication to another based on the cost of the medication rather than physician recommendation. The Safe Step Act protects individuals with life-threatening illnesses like pulmonary hypertension from risky step therapy requirements.

TAKE ACTION

SCHEDULE AN IN-PERSON VISIT

Your elected officials work for you. Meeting with them to share your story is an effective way to gain their support of legislation affecting PH patients. There are several ways to meet with your Members of Congress, including visiting their local office, attending a town hall or inviting your senator or representative to your support group meeting.

PHA can set up an in-person meeting for you and provide all the information and materials you need. Email us to get started! Or, to set up a visit yourself, start with our search tool to find contact information for your Members of Congress.

Schedule an In-Person Visit

ILLINOIS RESIDENTS: MAKE COPAY CARDS COUNT IN YOUR STATE

Some health insurance plans in Illinois accept co-pay cards and charitable grants to pay for costly medication but do not apply them to the individuals deducible or out-of-pocket maximum. Take action to ensure that these payments are used as intended to reduce patients’ out-of-pocket costs.

TAKE ACTION

“MEET” YOUR MEMBERS OF CONGRESS BY PHONE

Did you know you can “meet” your Members of Congress from the comfort of your home? A scheduled phone conversation with legislative staff can be a highly effective way to engage them in fighting PH. PHA will manage the scheduling and provide materials to help your conversation run smoothly. Request a phone meeting now.

Request a Phone Meeting

STAY INVOLVED

When you join PHA’s grassroots advocacy network, we send you the resources you need to stay in touch with your Members of Congress a few times a year about the issues that impact your life. Be heard. Be a PH advocate.

Join the Campaign

“For me, it was important to remember that our Members of Congress are people just like us.  When you meet with them, all you have to do is speak clearly and honestly and be prepared with PHA information. Also, having other PHers with you makes it all so much easier.”

Diane Ramirez, PHA Advocate

“I am so happy that I had the opportunity to share about my sister’s situation. I want to do it again.”

Jane Armstead, PHA Advocate

“Being active in advocacy gives me another way to fight PH besides the physical fight. We all have the right to be heard by our elected representatives, so there’s nothing to fear… just do it!”

Perry Mamigonian, PHA Advocate

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