Advocate

This year, Congress will debate and create laws that impact the every-day lives of individuals with pulmonary hypertension. Laws about healthcare services, insurance coverage, copay assistance programs and more. The Pulmonary Hypertension Association makes it easy for you to educate your elected officials about the needs of the PH community. Be heard. Be a PH advocate.

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Senate Votes to Allow Continued Debate on Healthcare Reform
Help Keep the Focus on Patient Protections!

The Senate voted Tuesday to continue to debate on healthcare reform. The starting point for this debate will be the American Health Care Act (ACHA), the healthcare bill the House of Representatives passed earlier this year. In its current form, the ACHA would leave 23 million more people uninsured by 2026 and would negatively impact many in the PH community.

Over the next few days, legislators will consider a variety of amendments to the ACHA while trying to secure enough votes to pass a healthcare reform bill in the Senate. While some of these amendments may be minor, others represent a complete alteration of the legislation including one that would “amend” the ACHA to turn it into a repeal of existing law — the Affordable Care Act — without a replacement.

This open process means that your voice is again critical. Remind your senators that healthcare reform must meet the needs of individuals living with complex, chronic health conditions. Ask them to go back to the drawing board and work together to protect individuals living with serious illnesses.

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Make a Phone Call

Did you know you can “meet” your Members of Congress from the comfort of your home? A scheduled phone conversation with legislative staff can be a highly effective way to engage them in fighting PH. PHA will manage the scheduling and provide materials to help your conversation run smoothly. Request a phone meeting now.

Request a Phone Meeting

Stay Involved

When you join PHA’s grassroots advocacy network, we send you the resources you need to stay in touch with your Members of Congress a few times a year about the issues that impact your life. Be heard. Be a PH advocate.

Join the Campaign

Schedule an In-Person Visit

Your elected officials work for you. Meeting with them to share your story is an effective way to gain their support of legislation affecting PH patients. There are several ways to meet with your Members of Congress, including visiting their local office, attending a town hall or inviting your senator or representative to your support group meeting.

PHA can set up an in-person meeting for you and provide all the information and materials you need. Email us to get started! Or, to set up a visit yourself, start with our search tool to find contact information for your Members of Congress.

Schedule an In-Person Visit

Share Your Opinion

With the nation’s journalists looking for the public to add to the healthcare debate, this is a good time to try to get your local newspaper to share your story. One of the most effective ways to do this is to write an Opinion-Editorial (op-ed) and submit it to your hometown paper for consideration.

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“For me, it was important to remember that our Members of Congress are people just like us.  When you meet with them, all you have to do is speak clearly and honestly and be prepared with PHA information. Also, having other PHers with you makes it all so much easier.”

Diane Ramirez, PHA Advocate

“I am so happy that I had the opportunity to share about my sister’s situation. I want to do it again.”

Jane Armstead, PHA Advocate

“Being active in advocacy gives me another way to fight PH besides the physical fight. We all have the right to be heard by our elected representatives, so there’s nothing to fear… just do it!”

Perry Mamigonian, PHA Advocate

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