Advocate

Take Action

Take action during Pulmonary Hypertension Awareness Month! Use the resources below to email, call or even visit your Members of Congress. Ask them to take action on the issues that impact the PH community every day.

Send an Email

Tell Congress: Step-Therapy Wastes Precious Time
“Step therapy” rules, which require individuals to fail on a less-expensive therapy before getting the medication their physician prescribed, can be dangerous or even deadly to those with PH. Ask your U.S. representative to take action now.

Email Now!

Send an Email

Help Lower Out-of-Pocket Costs for PH Medications
Ask your U.S. representative to help reduce out-of-pocket costs for many PH patients by co-sponsoring the Patients’ Access to Treatment Act.

Email Now!

Make a Phone Call

Did you know you can “meet” your Members of Congress from the comfort of your home? A scheduled phone conversation with legislative staff can be a highly effective way to engage them in fighting PH. PHA will manage the scheduling and provide materials to help your conversation run smoothly. Request a phone meeting now.

Request a Phone Meeting

Stay Involved

When you join PHA’s grassroots advocacy network, we send you the resources you need to stay in touch with your Members of Congress a few times a year about the issues that impact your life. Be heard. Be a PH advocate.

Join the Campaign

Send an Email

Share Your Financial Assistance Story with Congress
Many lawmakers don’t understand the unique financial challenges facing individuals with PH. H.R. 3976 would help protect charitable assistance programs and the patients they serve.

Email Now!

Schedule an In-Person Visit

Your elected officials work for you. Meeting with them to share your story is an effective way to gain their support of legislation affecting PH patients. There are several ways to meet with your Members of Congress, including visiting their local office, attending a town hall or inviting your senator or representative to your support group meeting.

PHA can set up an in-person meeting for you and provide all the information and materials you need. Email us to get started! Or, to set up a visit yourself, start with our search tool to find contact information for your Members of Congress.

Schedule an In-Person Visit

Send an Email

Ask Congress to Support the RARE Act
The Rare Disease Advancement, Research and Education Act benefits the entire rare disease community. It includes increases in rare disease funding at NIH and CDC. Ask your representative to co-sponsor. Email now!

Email Now!

“For me, it was important to remember that our Members of Congress are people just like us. When you meet with them, all you have to do is speak clearly and honestly and be prepared with PHA information. Also, having other PHers with you makes it all so much easier.”

Diane Ramirez, PHA Advocate

“I am so happy that I had the opportunity to share about my sister’s situation. I want to do it again.”

Jane Armstead, PHA Advocate

“Being active in advocacy gives me another way to fight PH besides the physical fight. We all have the right to be heard by our elected representatives, so there’s nothing to fear… just do it!”

Perry Mamigonian, PHA Advocate

Learn More

What We Fight For
PHA’s guide to Understanding the Legislative Process
Explore our History of Success advocating for people living with PH
Download and share Advocacy Resources
Sign up to receive Advocacy Action Alerts via email

Get a proclamation
A proclamation is issued by a mayor or governor to formally recognize a person or organization. By connecting with your local elected officials, you can have November declared “Pulmonary Hypertension Awareness Month” in your community. A proclamation catches the attention of the media and raises awareness. In addition, the mayor or governor may agree to make the proclamation signing a photo opportunity. Download our template (.doc).