Advocate

PHA’s Advocacy Action Center provides the tools you need to educate your elected officials about pulmonary hypertension. Check back throughout the year to make your voice heard on legislation and regulation that impacts the PH community.

Join PHA November 10 for the Pulmonary Hypertension Awareness Month Day of Action. When U.S. senators and representatives hear from constituents impacted by pulmonary hypertension, they are more likely to make laws that improve life expectancy and quality of life for the entire community.
Bring your PH awareness raising to Congress this November. Send your email now.

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Ask Your Senators to Support Copay Assistance

More health insurance plans are forcing people with pulmonary hypertension (PH) to pay twice for their medication. The plans require them to pay their full deductibles out of pocket while also using copay assistance. Some plans refuse to accept non-profit assistance grants to force people with expensive medications off the plan.
In the next few weeks, Congress will have an opportunity to stop these unfair policies at least through 2021 by including an Emergency Access to Marketplace Insurance provision in the next COVID-19 legislation. Ask your senators to support the provision — an important first step toward banning these burdensome, expensive practices.

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“For me, it was important to remember that our Members of Congress are people just like us.  When you meet with them, all you have to do is speak clearly and honestly and be prepared with PHA information. Also, having other PHers with you makes it all so much easier.”

Diane Ramirez, PHA Advocate

“I am so happy that I had the opportunity to share about my sister’s situation. I want to do it again.”

Jane Armstead, PHA Advocate

“Being active in advocacy gives me another way to fight PH besides the physical fight. We all have the right to be heard by our elected representatives, so there’s nothing to fear… just do it!”

Perry Mamigonian, PHA Advocate

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